Liver disease itching: What helps?

Posted by jeanne5009 @jeanne5009, Nov 26, 2018

Does anyone have info or treatments for itching? My scalp and lower back have a very itchy rash. Tried ointment shampoo, antihistamine and steroids...wont go away. I am Stage 4 liver cirrhosis. Dermatologist and PVP are stumped.

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Hi Crystal. I had terrible itching for about 2 years. I found that ice packs helped relieve the back itching. My wife purchased large ice packs on Amazon, and I would sleep on them with a towel between the ice-pack and my skin. Sarna helped somewhat. I preferred the “sensitive skin” version. Benadryl did not really help me much - but everyone is different, so you should definitely try it. Also my wife bought me plain white cotton gloves from Amazon, that I would wear at night to prevent myself from breaking my skin with the incessant itching. It was awful. But the first thing I noted post-liver transplant that my itching had disappeared. Hopefully you can find some relief.

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@crystalfaye

I am in agony!!! My doctor has me on several different meds but nothing has helped

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Crystal, I am concerned for your quality of life with your uncontrolled itching. Has anything that you have tried given you at least a temporary relief?
I think you mentioned a possible stent - have you had any response from the doctor with regards to this? Is this still a potential treatment?

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@crystalfaye

I am in agony!!! My doctor has me on several different meds but nothing has helped

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Oh, Crystal. I'm so sorry that you are still dealing with the chronic itching and that nothing seems to help.

I moved your message to this existing discussion about liver disease, transplant and itching where members have offered helpful tips and ideas.
- Liver disease itching: What helps? https://connect.mayoclinic.org/discussion/liver-disease-itching/

Crystal, I guess Sarna did help enough. I hope by reading through the previous posts you may discover some suggestions that you and your doctors haven't tried yet.

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I am in agony!!! My doctor has me on several different meds but nothing has helped

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@crystalfaye

Hello. I am 9 weeks post liver transplant. About 4 weeks ago I started itching. No particular spot just all over and it seems to get worse at night. I mentioned this at my last clinic appointment and was informed that this happens to a lot of transplant recipients. They are not concerned even though my ALP is a bit elevated. Has anyone dealt with this and if so what did you use for the itching?

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How did your annual visit go?

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@crystalfaye

A little bit. I’m being sent for an MRI to rule out a stricture. Thank you so much for checking in! How are you doing?

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Hi @crystalfaye
I am happy to hear the Sarna worked a little. If you are allowed, maybe try a dose of Benedryl (but be prepared for a nap if you take it).
I am doing well. Next week I go to Mayo for my annual visit and I will hear about the treatment for my positive BK virus blood test. It sounds like the answer is a reduction of immune suppression.

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@crystalfaye

Hello. I am 9 weeks post liver transplant. About 4 weeks ago I started itching. No particular spot just all over and it seems to get worse at night. I mentioned this at my last clinic appointment and was informed that this happens to a lot of transplant recipients. They are not concerned even though my ALP is a bit elevated. Has anyone dealt with this and if so what did you use for the itching?

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A little bit. I’m being sent for an MRI to rule out a stricture. Thank you so much for checking in! How are you doing?

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@crystalfaye

Hello. I am 9 weeks post liver transplant. About 4 weeks ago I started itching. No particular spot just all over and it seems to get worse at night. I mentioned this at my last clinic appointment and was informed that this happens to a lot of transplant recipients. They are not concerned even though my ALP is a bit elevated. Has anyone dealt with this and if so what did you use for the itching?

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Hi @crystalfaye 😊
I am just checking in! ....Did the Sarna help a little bit?

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@katebw

@crystalfaye I had terrible, terrible itching both pre and post transplant. I used Sarna anti itch cream extra strength with menthol. And of course, friends hands, door jams, spoons. It was torture and mostly on my back. Post transplant it lasted a month then began to fade. I still put moisturizer all over, except my scar, each morning after showering. Itching is no longer a worry after a year of relentless itching. It is very common.

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I purchased some Sarna today. Praying it helps!

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@crystalfaye

Hello. I am 9 weeks post liver transplant. About 4 weeks ago I started itching. No particular spot just all over and it seems to get worse at night. I mentioned this at my last clinic appointment and was informed that this happens to a lot of transplant recipients. They are not concerned even though my ALP is a bit elevated. Has anyone dealt with this and if so what did you use for the itching?

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Hi @crystalfaye 😊
Congrats on your new liver transplant! I am a two year post kidney transplant patient and I remember having itching for the first couple of months. (I had no itching pre-transplant but I needed a kidney not a liver.)
The itching was especially pronounced the first month when I was living in the rental close to the hospital. When I called my transplant nurse back then, she told me it was common and I could take some Benedryl to calm it down. I know you are a liver transplant patient and I am a kidney transplant patient, so I am not sure if we are on the same immune suppression meds, prophylactic meds, etc but it may be just the body adjusting to the new meds because the itching did go away. The Benedryl helped, but you would have to discuss this solution with your transplant nurse since I don't know if it's safe for a liver transplant patient.
Again Congratulations! ❤

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