Liver disease itching: What helps?

We are listed at the Mayo Clinic in Arizona.

Thanks for the feed back

Rick

Feeling extremely tired and I have an itching problem going on.

Thanks for your reply

Mayo Clinic in arizona
Thank you for the info. Any information is appreciated

Unfortunately Rick - there is no certain time frame. So many factors play into the decisions as to who will be offered an available organ. MELD score, blood type, body mass, even the region you live in and the distance to the hospital can impact it. I waited nearly 2 years, changed hospitals and eventually was transplanted at Mayo Jax in Feb 2022. You or your caregiver need to advocate and press your case with the transplant team. I found that this helped move my case along. Where are you listed?

Hi, @a149771. Congratulations on being placed on tht waiting list to receive your new liver/new life. My transplant was in 2009, and I remember that I asked the same question! And the answer that I received, as well as everyone else, is that there is no way of knowing when you will get the call for your transplant surgery. Waiting for an organ transplant is not like waiting in line to get into a concert or event.
The amount of time on the waiting list is only a part of the criteria. I have located some information under the heading: "I’m at the top of the list. Will I get the next liver?" in this
- Connect Blog Article - Liver Transplantation: Understanding the MELD Score
https://connect.mayoclinic.org/blog/transplant/newsfeed-post/liver-transplantation-understanding-the-meld-score/
Here is what other members have done while waitinbg for the transplant call-
- Waiting for the Call: What needs to get done at home before you go?
https://connect.mayoclinic.org/discussion/waiting-for-the-call-what-needs-to-get-done-at-home-before-you-go/
@a149771 - Does the information that I shared help to answer your question? What are some questions that you would like to ask as you begin the waiting process? How are you feeling?

I am on the list waiting for New liver. How long after being approved for transplant before
Before I get a call for surgery

Would like feedback back.

Thanks
Rick

I tried everything for the itching until I found spray on Benedryl. Take a shower, spray it all over, a light dusting of corn starch baby powder and you're good to go for the day. I too had horrible nose bleeds that left me hanging over the laundry sink for hours waiting for it to stop, I even fell asleep there once or twice. It went on for a year and a half until I found an ENT that cauterized the inside of my nostrils. No more nose bleeds. I used to leave the house with a change of clothes, towels, wet washclothes in case they happened while out. I was also told to only use Afrin regular nasel spray as anything else will make it worse. It's been seven years since the cauterization and no nosebleeds since.

Check your meds some I was given I was highly allergic to I broke out in hives Spriolactiin was the culprit also any sulpha drugs

I was itching like crazy before my transplant. Mentioned it to Mayo Doctor during evaluation weekand he prescribed this. Works almost instantly.

Ask your Dr about hydroxyzine - it has helped my itching.