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Liver disease itching: What helps?

Posted by jeanne5009 @jeanne5009, Nov 26, 2018

Does anyone have info or treatments for itching? My scalp and lower back have a very itchy rash. Tried ointment shampoo, antihistamine and steroids...wont go away. I am Stage 4 liver cirrhosis. Dermatologist and PVP are stumped.

Interested in more discussions like this? Go to the Liver Diseases Support Group.

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melhem | @melhem | Mar 22, 2019

I am a nurse and I have experience in herbal medicine for more than 15 years

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Rosemary, Volunteer Mentor | @rosemarya | Mar 22, 2019
In reply to @melhem "Yes. I have" + (show)
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Yes. I have

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@melhem, I see that you are a new member and I want to extend a Welcome to Mayo Clinic Connect.
What brings you to this discussion about liver disease itching? Would you care to share some information about yourself so that I can better communicate with you?

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Rosemary, Volunteer Mentor | @rosemarya | Mar 21, 2019
In reply to @gaylea1 "@rosemarya Hello. It is cool here but the crocus are poking through. I am starting to..." + (show)
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@rosemarya Hello. It is cool here but the crocus are poking through.
I am starting to eat more solids without pain. Tastebuds are still way out of whack and certain food textures (like bread) are still compromised. I am moving April 1st so I've been pàcking boxes to keep busy.
I do have a question though. What are your thoughts on swimming in public/private pools, oceans and lakes? I'm concerned about bacteria in the water.

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@gaylea1, I am going to make a nonmedical guess that when your bile duct issues are resolved, your taste will return to normal. I have my fingers crossed🤞.

As far as swimming etc, here is what I found in a handout after my transplant about Infection Prevention after Transplant. It is a typed page, and there is no quoted source. Here is what it says about water:
-Avoid use of hot tubs, especially public ones. Swimming in pools or the ocean is okay as long a you do not have any open cuts or sores. Do not swallow the water. Wear water shoes or sandals when walking along the beach or wading into water from the shore.
-Do not wade into flood waters or murky lakes and streams.

I am happy that @contentandwell has provided excellent information from her own experience of what works for her. I am not a water person.

I wonder if anyone else has any water related experience to share? What have you been told? What works for you?

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caro72 | @caro72 | Mar 18, 2019
In reply to @gaylea1 "@caro72 I met quite a few people from the North Bay area here in London at..." + (show)
Profile picture for gaylea1 @gaylea1

@caro72 I met quite a few people from the North Bay area here in London at the transplant clinic at University Hospital. I hope you get the answers you are looking for.

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I have been to London a few times for lithotripsy in 2015 kidney stones so will meet my dietitian from work to see what would be the best diet for me they put me on Keto then low fobmap what next

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gaylea1 | @gaylea1 | Mar 18, 2019

@contentandwell thank you so much for your help. I will definitely ask my transplant team as well.

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gaylea1 | @gaylea1 | Mar 18, 2019

@caro72 I met quite a few people from the North Bay area here in London at the transplant clinic at University Hospital. I hope you get the answers you are looking for.

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caro72 | @caro72 | Mar 18, 2019
In reply to @gaylea1 "@caro72 hi there. I also am from Canada - London Ontario. I had a liver transplant..." + (show)
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@caro72 hi there. I also am from Canada - London Ontario. I had a liver transplant Nov 28 2018. Where are you from? Which hospital are you referred to?
I would be asking my doctor a lot of questions. Are you seeing a hepatologist? Has a transplant been mentioned or alternative medication been prescribed? Until you know your MELD score and have been referred to a specialist you will not be placed on a transplant wait list (if needed). If they are taking blood monthly ask what they are testing for. Just a few suggestions. Research and the good people on this site will help with any questions you have based on their experiences. We are all here to help.

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So I am from a small town near north bay and I was recently diagnosed so I haven’t met any other specialist then my gastroenterologist and when I ask questions he doesn’t really answer me so going to see my family doctor tmr and ask him all my questions and see if I could have maybe a second opinion

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jeanne5009 | @jeanne5009 | Mar 18, 2019
In reply to @rosemarya "@jeanne5009, My friends have told me that I know more about the inside working of my..." + (show)
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@jeanne5009, My friends have told me that I know more about the inside working of my body that anyone that they know. It sounds to me like you are soon to be in the same elite group. I do hope that you will get an appointment soon. However, I will add that sometimes if your need is an urgent one, your PCP can get you in to an appointment sooner that you can do it. Well - sometimes - Several years ago I was having breathing issues (Diagnosed as asthma possibly related to tapering off long term prednisone) After pulmonolgist finished his eval, my PCP was going to arrange an appointment with cardiologist and his office would call me later that afternoon. Instead, I had a frightening episode, and so my PCP had me go the the local hospital for overnight observation and he requested a cardiologist. Would you believe that the cardiologist did not even show up until next morning, and he never even got back with me for the results on a test that my PCP had already ordered. My husband and I had to call in Patient care representative to get a discharge order from my PCP. But I did get an appointment with a cardiologist for the following Monday!

With the changing season and weatehr coming, is there any change in the air quality and the red tide on the beaches?
Keep in touch. I send you a big hug.

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@rosemarya
Lol...now I get to study the heart! Abnormal EKG and the worst bloodwork Ive had in a year. Ammonia level is HH at 125 , creatine is up too. Just got these labs in my own hands for analysis...keeps me busy.
Im pusuing a cardio appt at Mayo, the former head of the cardio transplant group at Tampa General too. My hapatologist at TGH s working on that one too.
Meanwhile..my heart is fluttering...must be Spring!

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