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Liver disease itching: What helps?

Posted by jeanne5009 @jeanne5009, Nov 26, 2018

Does anyone have info or treatments for itching? My scalp and lower back have a very itchy rash. Tried ointment shampoo, antihistamine and steroids...wont go away. I am Stage 4 liver cirrhosis. Dermatologist and PVP are stumped.

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racing212 | @racing212 | Oct 30, 2020
In reply to @gphetteplace "@racing212 I sincerely empathize with your disappointment and frustration. My liver and kidneys were damaged by..." + (show)
@gphetteplace

@racing212 I sincerely empathize with your disappointment and frustration. My liver and kidneys were damaged by a bout with sepsis. My kidneys recovered enough that my meld score dropped to 12 and I thought I would never get a transplant. I remember sobbing during one of an endless string of paracenteses at the hopelessness of the situation. A couple months later I was listed and was transplanted only a month later. Things change very fast. I pray you will be back on the list soon.

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Thank you

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gphetteplace | @gphetteplace | Oct 29, 2020

@racing212 I sincerely empathize with your disappointment and frustration. My liver and kidneys were damaged by a bout with sepsis. My kidneys recovered enough that my meld score dropped to 12 and I thought I would never get a transplant. I remember sobbing during one of an endless string of paracenteses at the hopelessness of the situation. A couple months later I was listed and was transplanted only a month later. Things change very fast. I pray you will be back on the list soon.

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1 reply
racing212 | @racing212 | Oct 29, 2020

I'm getting so tired of seeing Dr's and taking medication

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Oct 6, 2020
In reply to @racing212 "They took me off the list and said come back on 6 months and we'll check..." + (show)
@racing212

They took me off the list and said come back on 6 months and we'll check the kidney again

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Hi, @racing. It is good to hear your voice.
Why are you off the transplant list? Was it your MELD score or the kidney cyst?
How are you feeling?
Do you have questions that I can help you with?

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racing212 | @racing212 | Sep 27, 2020
In reply to @colleenyoung "@racing212, what does this mean for you? What is the next step?" + (show)
@colleenyoung

@racing212, what does this mean for you? What is the next step?

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They took me off the list and said come back on 6 months and we'll check the kidney again

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 27, 2020
In reply to @racing212 "I just got back from the Mayo clinic in MN. And my meld score dropped. They..." + (show)
@racing212

I just got back from the Mayo clinic in MN. And my meld score dropped. They also found a dime size tumor on my kidney

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@racing212, what does this mean for you? What is the next step?

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1 reply
racing212 | @racing212 | Sep 26, 2020
In reply to @rosemarya "That will be here before you know it. Hope you have a good check up! How..." + (show)
@rosemarya

That will be here before you know it. Hope you have a good check up!
How have you been feeling? Any hospitalizations that you had to have?

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I just got back from the Mayo clinic in MN. And my meld score dropped. They also found a dime size tumor on my kidney

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1 reply
skolotilin | @skolotilin | Sep 2, 2020

Thanks, I’ll check mine out.

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Sep 1, 2020

That will be here before you know it. Hope you have a good check up!
How have you been feeling? Any hospitalizations that you had to have?

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