Liver Cirrhosis: Want to connect with others

I'm so glad to read your comment. I was diagnosed with cirrhosis stage 4 last week (11/4/24)
I'm devastated and was too told it was end of life. I am without hope and they have more tests planned in Dec but my Dr said it can't be reversed. I am frantically thinking of all the things I need to do to get my affairs in order.
My liver numbers have been elevated since 2019 and the doctors just watch it every 6 months. And now this diagnosis 😩

Good Day,
Good news! Cirrhosis is not an automatic death tomorrow sentence. You can still have a life full of friends, family, and good times. It is definitely a wake up call to take care of your body. Some people live a long time with cirrhosis. You mentioned going from decompensated to compensated. This is so very important. Your doc is right about your lifestyle. It does require discipline and diligence to improve liver function. More information here
https://www.mayoclinic.org/diseases-conditions/cirrhosis/in-depth/cirrhosis-self-care/art-20588994
I know how upsetting this news can be. Try to find out all you can and extend your life by doing as many of the right things you can to prolong your health. Best of luck to you.

@parrot53
This is the first sliver of light I've had so far. I am overwhelmed and not sure how to go forward. It was such a gloom and doom sentence.
Thanks for the hope

@puddy68 Hello. I am Tia. I had a liver transplant almost two years ago. I am 43 years old, and I had alcoholic cirrhosis. I know it feels so daunting, but life after transplant is amazing. As far as alcohol and life changes, it is way easier than they threat. Being faced with death can really inspire change. Don't give up. Have faith, hope, and know you are not alone. It will feel like it at times, but you're not.

@parrot53
I typed the date wrong - I just found out 2 months ago 11/3/25. It's all new to me and so over whelming.

I was diagnosed with liver cirrhosis in Sept 2023. My meld score was 22. They put me on Ursodiol in December of that year. Since then I have carefully watched what I eat and what I put on my skin. I lost nearly 60 pounds of weight at that time as well due to abdominal surgeries. My meld score has been at 10 for over a year and a half. My transplant team sent me back to regular hepatology about six months ago and said it could be years before I need a transplant or ever. I am 62 with AIH.

Hello I feel exactly the same way im so scared Im compensated diagnosed 4 months ago have had PBC and NASH for 21 years I never thought it would get worse

@lindylu67 Hi, lindylu. I want to welcome you to Connect, where you are going to learn that you are not alone with your unexpected worsening cirrhosis. My experience is that after 8 years with liver diagnosis of PSC, my condition which had been stable, began a rapid deterioration. Unfortunately, that can happen with liver disease, and it is confusing and scarey because everyone can have different symptomes and different outcomes. For me, with my progressive disease, my journey took me to a successful transplant in 2009. I tell you this because I want you to know that I really understand how you are feeling right now - the unknowing part is absolutely awful.

Lindy, With 21 years of managing your liver health, I can see that you have learned how to manage your diet and lifestyle. I'm sure that has not always been as easy task!
What has your doctor offered as a "next step" for you?

@rosemarya hello my Dr said every 6 months ultra sound,bloodwork every 3 months,no alchol and eat healthy Said I could stay compensated for many many years