Liver cancer: Questions about clinical trials and more

Posted by alfonso22 @alfonso22, Jan 17, 2022

Hello I have 2 questions 1st is the trial treatment is just for people who tried other treatment first or it could be for any who wants to try. 2nd my doctor never told me there was another tumor even tho is not cancer and small on size I just found on my Y90 evaluation technician show my MRI scan and explain both tumor and locations not sure why doctor never said anything even tho I ask if the left side was a tumor as my primary doctor told new cancer doctor said no was on the right side I do not like when she try to hide facts any ideas why I was told so thank you

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Hello, @alfonso22 . In answer to your first question about clinical trials, the information about the trial should answer your question. Clinical trials are research and have to be very, very clear about who can join the trials. So if there is a clinical trial that you think you might qualify for there will be someone to contact to ask those questions. In answer to your second question, I get your frustration. It's hard to know why the doctor did not give you all the information. I know how hard this is because it feel like doctors are in a hurry. But you are the patient in the room with the doctor and so you are the most important person there. Do you think you can be persistent with your questions until they are answered? If you know what questions you want to ask can you write them down ahead of time? And then write down what the doctor says to you? Also, is a family member in the room with you?

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@naturegirl5

Hello, @alfonso22 . In answer to your first question about clinical trials, the information about the trial should answer your question. Clinical trials are research and have to be very, very clear about who can join the trials. So if there is a clinical trial that you think you might qualify for there will be someone to contact to ask those questions. In answer to your second question, I get your frustration. It's hard to know why the doctor did not give you all the information. I know how hard this is because it feel like doctors are in a hurry. But you are the patient in the room with the doctor and so you are the most important person there. Do you think you can be persistent with your questions until they are answered? If you know what questions you want to ask can you write them down ahead of time? And then write down what the doctor says to you? Also, is a family member in the room with you?

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thank you that really helps have a great day

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After the Y90 mapping is that area get Bruise anyone knows thank you

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I didn’t get a bruise but I think I read it does happen sometimes. It’s just from the needle stick. Congrats on starting your y90. I’m anxious to see how you progress. Best, Diane

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@alfonso22

After the Y90 mapping is that area get Bruise anyone knows thank you

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Alfonso, did you get bruising at the puncture site? I hope it is healing, although bruises often look worse for a while before they get better. Like @digibson, I look forward to hear how things are going and hope you'll keep us updated.

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@colleenyoung

Alfonso, did you get bruising at the puncture site? I hope it is healing, although bruises often look worse for a while before they get better. Like @digibson, I look forward to hear how things are going and hope you'll keep us updated.

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thank you i did get brusing next to the puncture side bothside were purple but I am lucky no major pain only the day after, and all healing well no needed of any pain klillers or mausea pills now waiting for the beats and hopping this Y90 treatment works I really appreciated all your help and information thank you very much .

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@alfonso22

thank you i did get brusing next to the puncture side bothside were purple but I am lucky no major pain only the day after, and all healing well no needed of any pain klillers or mausea pills now waiting for the beats and hopping this Y90 treatment works I really appreciated all your help and information thank you very much .

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Yes, let us know when you’re first shoot is.

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@digibson

Yes, let us know when you’re first shoot is.

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this friday 11th will be my 1st Y90 treatment any comments to help me out also met with the transplant team still not my cup of tea my number is 6 but because of the cancer they want transplant. i know is to get thing going incase get worse but I am on Gods hand I do thank you all for your support that helps me alot

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@alfonso22

this friday 11th will be my 1st Y90 treatment any comments to help me out also met with the transplant team still not my cup of tea my number is 6 but because of the cancer they want transplant. i know is to get thing going incase get worse but I am on Gods hand I do thank you all for your support that helps me alot

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Alfonso, how did your first treatment go last Friday? How are you doing now?

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@colleenyoung

Alfonso, how did your first treatment go last Friday? How are you doing now?

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It went well no side affects feeling ok gave me pills for pain or nausea did not have to take them at all hope it works will check in 8 weeks or so thank you

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