Livedoid vasculopathy

By the way, the doctor told her to minimize her sugar and salt intake. Does anyone know if salt and sugar intake is related to LV?

Hi @angelasmom thank you for starting this thread. My mom has recently been diagnosed with LV. I'm devastated that there is no cure, hopefully she will do well managing it.

Hi @linde,Xarelto in simple words is a thrombosis inhibitor.As far as I know it doesn't reduce platelets.Your doctors know better than me and will surely do the best for you!Be in touch!!

Thank you for your responses. I only use Santyl sparingly right on the ulcer and change twice a day. Because of the thinning I also only use the cortizone when so itchy I need help. I take a full dose aspirin and anagrelide to reduce platelets. I am not sure how Xarelto exactly works to help. One of my Dr's has mentioned it.

Hi @linde,courage!!!Has your doctor tried some other form of therapy,for example blood thinners,like Xarelto;Of course these medications if prescribed to you by your doctor should be given only in close cooperation with him!

I wouldn't dare use cortisone 10 anywhere near my ulcer. it is in a strong enough dosage to irritate the skin and it will thin the skin with repeated use. When the skin thins the ulcer is more likely to enlarge as it breaks down the fragile skin.  I was on a week cortisone compound for months but my skin thinned and ulcer got bigger.  the doctor warned me about the thinning.  I read the whole list of ingredients on anything I put on my skin before I buy anything and I look at the chemical structures of the ingredients.  I react to things and it may take hours or days for the reaction to show.  And I keep a list of preparations, medicines that I react to. Cortizone is a double edged sword,,,,, just depends on which edge you are dealing with. 

Hi @linde,

The webpage for Santyl ointment (http://www.santyl.com) mentions, "Occasional slight temporary redness has been noted in surrounding tissue when applied outside the bone."
I'm also tagging @aimeenc @prairiesmoke @spence @grandmaabby @zenk @mlemieux @marlene64 @gonefishinmt to see if they have any thoughts about ankle ulcer and wound care.

Being new to LV I have a simple question. I have an ulcer on my ankle for about 7 months now. It seems to be finally closing but around it the skin is all red and bumpy and around that it is so-o itchy. I do use Santyl on the ulcer and have tried honey around it and sometimes cortisone 10. Does anyone with more experience have any other suggestions? Thank you.

I do the same thing watching tv. I just leave my job this ulcers are giving me lots of pain and want be able to work.

Thanks dear i will try it. right now i am on homeopathy medicine i have tried allopathic treatment for 4 years but result is only temporary relief. So this time i am changing to homeopathi Dr tell me its work slowly but effectively and without any side effects. So i hope it's work