Lifelong Gut Struggles.... Has anyone else felt like giving up hope?

Posted by lee2025 @lee2025, May 23 9:20pm

Has anyone else felt like they’ve done everything right for months… and their gut still won’t cooperate? 🙁

I’m 41, an expat living in China for the past 16 years, and I’ve been on a deep gut healing journey for the last 4-5 months. After receiving a DNA test focusing on gut health and immunity, I discovered I have fructose malabsorption, multiple food intolerances, and allergies to dairy, oats, peanuts, dust, and grass (seriously?!). Honestly, after years of living with daily gut issues—likely worsened by China’s air quality and environmental stress—I finally committed to a total reset.

Since then, I’ve overhauled my life:

- No eating out
- Super clean, unprocessed, anti-inflammatory diet
- Over an hour a day spent de-stressing through breathwork, yoga, mindfulness, and journaling
- No sugar, alcohol, or caffeine

Not a single shortcut—truly doing the work!

And yet... I’m still being teased with moments of progress (a half decent poop), followed by the dreaded return of muddy, broken, floating stools—like The Empire Strikes Back, but in my toilet. 💩

It’s been one of the hardest journeys of my life.
And I’m so so so tired of it!

I’d love your help and insight if you’ve been in similar shoes:
- What could be going on when muddy stool keeps returning despite strict lifestyle changes?
- How did you know when you were dealing with leaky gut vs. IBS vs. possible histamine intolerance?
- Have you found a rhythm with reintroducing foods safely—or does your gut just “decide” when it’s going to turn?
- How did you stay mentally strong when healing felt like one step forward, two steps back?

I’m open, committed, and still hopeful—but it’s getting harder to hang onto that hope alone.

Thanks for reading this and holding space. Just knowing someone else gets it helps more than you know! 🙏

Interested in more discussions like this? Go to the Digestive Health Support Group.

I was diagnosed with IBS years ago (25?). I went from doc to doc, had the procedures twice and no help. I was close to suicidal when I found the FODMAP diet which changed my life. This was developed by a university in Australia after deep research into IBS. It's not a cure and doesn't claim to be but it has really made my life bearable.

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@rozy288

I’ve been tested for SIBO Many X & was negative.
I took the Xifaxan antibiotic for it anyway . It helped once , 9 years ago but then took it 2 more x & no help . I suffer chronic 7 diff digestive illnesses for 11 years daily . Seen 5 GI Dr’s , had over 20 tests done ☑️. Tried everything under the sun 🌞 they make . Eat tiny ( hate eating ) and healthy. No life to speak of anymore. So I’m not sure that Dr. is right about food poisoning/ causing IBS ?

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I just read that you can get Mark Pinental's IBS and SIBO webinar replay. It's free

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@gussie

Actually I just finished with the webinar. Basically Dr. Pimental states that almost all IBS D or C are caused by SIBO. And a lot of that is caused by having food poisoning at some time that started the whole process. Actually I did have food poisoning in France in the early 70s and I have had this problem for years and years. He also gives all of his patients breath tests and antibody tests. He does send out the latest papers he wrote free of charge. I don't exactly know how you go about getting them. But I imagine online somewhere.

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Thank you. I have always suspected that I got food poisoning because my problem came on so suddenly, although I have had IBS on my life, but it’s nothing like this. I’ll look online. Good luck to you and thank you again.

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I would Google it and also if they have an 800 number I would call that. Usually on the website it will give you the details but definitely try again.

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@rozy288

I’ve been tested for SIBO Many X & was negative.
I took the Xifaxan antibiotic for it anyway . It helped once , 9 years ago but then took it 2 more x & no help . I suffer chronic 7 diff digestive illnesses for 11 years daily . Seen 5 GI Dr’s , had over 20 tests done ☑️. Tried everything under the sun 🌞 they make . Eat tiny ( hate eating ) and healthy. No life to speak of anymore. So I’m not sure that Dr. is right about food poisoning/ causing IBS ?

Jump to this post

Wow, you’ve had a lot of tests done without much result. it sounds like you’ve already tried everything, but I have found a little relief with a stomach meditation by generation calm on YouTube. It’s the one that’s 9:58 long. (I know stress is the main cause of my stomach issues, but not 100%) I used to take Belap, which worked very well for my IBS and then they changed it to Donnatal, which was OK but not quite as good and now there’s a new one called Bentyl, which I haven’t tried. Have you ever tried any of those? They basically stop your bowels from contracting too much when you’re stressed. I’m not sure if that’s one of your issues or not. Have you ever tried oil of oregano? I saw that when I was googling solutions for SIBO and it says it can do other things for your gut besides help with that. I’m really sorry you have to deal with all that. It’s impossible to feel well if one can’t eat properly. It sounds like it has ruined your life and I get that. I’m so sorry. 💕

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