What is Life like after Bladder Removal?

Posted by ricardin2 @ricardin2, Aug 9 6:35pm

Hi,
I'm a 61-year-old male considering bladder removal for my non-muscle invasive high-grade bladder cancer. I was wondering if anyone out there has experience living with a Neo-bladder. . Looks like footballer Deion Sanders got one recently and has spoken positively about it. I"m wondering what's it's like over the long-term to live with a Neo-bladder. Any complications after 5,10, 15 years? Any feedback greatly appreciated.

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

jaxfl | @jaxfl | Aug 11 7:02am

Many patients do fine long term with neobladder. Some have complications. Some have recurrence. Many never become fully continent but manage that within reason.

I would focus on the near term personally and not obsess about the future. Nothing is guaranteed.

There are support groups. You can check BCAN and their forum (Inspire) for more insights.