Lidocaine intravenous treatment - peripheral neuropathy

Posted by Kathypelkey @kathypelkey, Jan 11, 2012

I would like to correspond with others who have periferal neuropathy- my dr. In Albany, ny now wants to try intravenous-lidocaine treatment. The cause of my per. Neu. Is unknown, I.ve had a spinal tap which they say ruled out Lyme disease bacteria. I had Lyme disease 2 x,s. any support…thanks!!

Interested in more discussions like this? Go to the Neuropathy Support Group.

I too have a periferal neurophy problem for some 12 years. My problem is not diabetes related, however, it could be nerve damage from caustic burns, toxins or other injuries. I would like to discuss any potential that would assist in calming my burning feet…Any suggestions?

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@angep

I too have a periferal neurophy problem for some 12 years. My problem is not diabetes related, however, it could be nerve damage from caustic burns, toxins or other injuries. I would like to discuss any potential that would assist in calming my burning feet…Any suggestions?

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I have much empathy for you. The burning is so cronic and painful. My feet burn all night and day, as well now as my entire legs and into my arms, shoulders and back. I am a strong person, I take medication in the morning as soon as I get up, then go and lay down till it takes effect. I take glucosamine, Vit. E, fish oil, B 12 , grapeseed oil, and a few more things. I now eat lots of natural yogurt, nonfat and my stomach feels fine. When you take pills, sometimes you get intestinal problems. I find the yogurt helps prevent that. Regarding my feet when I am up, I looked everywhere for comfy shoes with out much luck. I am going to see if my foot dr. Could prescribe therapeutic shoes. Believe it or not, Walmart sells dr. Sholes and they are my chosen shoe line. They are inexpensive and last for the average length of shoes. When I walk on hard floors my feet hurt more.

What are you doing to help your pain. I also do not suffer from diabetes the dr, believes its an inherited condition. I have no family history as I was an orphan so who knows.

I hope you do better with your pain. I am on tramadol in the am. This does help.
Good luck. Kathy

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@angep

I too have a periferal neurophy problem for some 12 years. My problem is not diabetes related, however, it could be nerve damage from caustic burns, toxins or other injuries. I would like to discuss any potential that would assist in calming my burning feet…Any suggestions?

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Sounds like we are in the same boat except for state lines. I have several other medical problems including a shoulder fracture that three operations have not corrected, numerous old rib fractures and ten year history of three left hip replacements. Needless to say my pains are chronic and strong medication is necessary to get by. I have tried hydrocodone, however, I find that tylonol 4 seems to help more than some of the stronger medications. I will continue to watch the forum for any and all assistance anyone may have to offer.

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@angep

I too have a periferal neurophy problem for some 12 years. My problem is not diabetes related, however, it could be nerve damage from caustic burns, toxins or other injuries. I would like to discuss any potential that would assist in calming my burning feet…Any suggestions?

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I am a very active, outdoor person of 60 . I have hiked,biked,kayaked,canoed nd fished all my life. I take my rv. And go whenever I can. I am so glad I have the love of the outdoors to motivate me to get better. Last summer I really suffered and was limited in my outdoor escapes. We in the vt. Area had the storm, and father that couldn’t get to where I go to camp. Hope the campgrounds nd roadways are repaired for spring. Hope you have. Leisure passion to help you keep the will to fight these ailments. Our minds cn get us better I believe. Not perfect but better. Good luck.

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I haven’t heard of that therapy but have been trying for years to stifle the neuropathic pain. There is a new spinal procedure that stimulates the nerves properly with the ability to test the device before it’s inserted. It was experimental a few years back but I am going to try it out. I’ll let you know if it works. Also, have you tried Vimpat? I was allergic but my Mayo Neurologist has had a lot of success with his peripheral neuropathy patients.

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Neurontin has been an amaz
Ing help to me

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I was diagnosed with Neuropathy about 6 years ago, after a battery of testing and to many doctors to mention. I have been on Gabapentin (Neurontin) all these years and it seems as if it has taken its toll. The side effects are wearing me down along with the chronic pain. So I am tiring the intravenous lidocaine next week. Also added Cymbalta to my daily routine along with high doses of b12-folic aid-R-Alpha Acid supplements. Ice packs and cold water soaks have really been the only thing that helped relieve pain temporarily. I hope to gain some insight from these discussions. Don’t know about anyone else but the hardest thing for me has been the lack of support from family and other people that don’t understand this disorder.

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Hi, I am so sorry to hear you say that there has been lack of support from your family and other people.
I do not know you but believe me I know how you feel. Having this condition makes you feel that there is no where to turn. I am just starting with this horrible condition. It seems to be moving fast on me. Now I am just looking for some kind of relief. Heard many talk about low dose naltrexone that you have to get a compound pharmacy to make. start at 3.0 for 3 days they say the up to 4.5. I am being treated for Lyme/Bartonella but I do not think that is what I have. I have the small fiber neuropathy pretty sure. now it is in my head and back of neck buring feet and hands. Yes I heard Gabapentin was good all the doctors recommend it but I am sure bad side effects. I am on some supplements B etc. Have not heard about the intravenous lidocaine who recommend that? Keep the faith.

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Hi, KathyPelley- What is the Lidocaine suppose to do? I am looking for a Doctor in Albany Is your Doctor with Albany Med. Can you give me his/her name. No doctors in my area are helping I also have been diagnose with Bartonella/Lyme from an Intregated Doctor. the meds are making me sick. Who knows I may not have it I would like to be tested more (maybe the spinal fluid test). But need a good Doctor that knows what they are doing. No help here. Need to find out for sure because if I do not have lyme I need to be on another regiment. Thanks

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@baileyladdie

Hi, KathyPelley- What is the Lidocaine suppose to do? I am looking for a Doctor in Albany Is your Doctor with Albany Med. Can you give me his/her name. No doctors in my area are helping I also have been diagnose with Bartonella/Lyme from an Intregated Doctor. the meds are making me sick. Who knows I may not have it I would like to be tested more (maybe the spinal fluid test). But need a good Doctor that knows what they are doing. No help here. Need to find out for sure because if I do not have lyme I need to be on another regiment. Thanks

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Hello @baileyladdie, Welcome to Connect. This is an older discussion and I'm not sure any of the members who posted here are still active. There are a couple of discussions with active members that you might want to read through and learn what other members have shared.

— IVIG Infusions:
https://connect.mayoclinic.org/discussion/ivig-infusions/
— Member Neuropathy Journey Stories: What's Yours?:
https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
It's good that you are researching and learning more about your conditions. There are two excellent sites to learn more about neuropathy and available treatments that you might want to view:
— Neuropathy Commons: https://neuropathycommons.org/
— Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

Have you thought about seeking help at a teaching hospital or major health facility like Mayo Clinic?

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