I was just diagnosed with CMML-2 with my Blast count at 15%…Looking for any advise or experience out there…I am about to start chemo with Vidaza…Bone marrow matches are also being looked at.
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I am a member who has CMML. I recently found out a close friend in the Chicago area has been diagnosed with a form of leukemia, but has not been told what type etc. he’s frustrated, to say the least. I told him to come to Mayo here in AZ. He can’t afford it. Does anyone on the list, or Mayo folks who can suggest wher he goes in Chicgo for some help? He is scared and wants to fight but he needs to know what.
Thanks in advance. Any suggestions would be appreciated.
Hello @tbone45. Thank you for posting to Mayo Clinic Connect.
I can understand being scared and frustrated. If your friend is interested- here is the link to the Mayo Clinic Appointment line, if he decides to seek a visit with a specialist here. http://mayocl.in/1mtmR63. Maybe looking into talking with someone at social services office to see if any qualifications are met for financial help. Also, here is a link to finding a physician in his local area. https://doctor.webmd.com/
I would suggest that your friend seeks some support. There is always the option of Mayo Clinic Connect or maybe check in with a local church for support?
Hi @teammeadows , welcome to Connect. I'd like to introduce you to other members who have chronic myelomonocytic leukaemia (CMML), like @jzier and @tbone45.
TeamMeadows, when do you start azacitidine (Vidaza)? What will be frequency? Are they waiting to see if you are a candidate for stem cell transplant before starting?
Hello…The Vidaza should be starting on the 29th for 7 days. They are searching for a bone marrow match but want to run me through 2 rounds of the Vidaza first.
Hello @teammeadows. You mentioned a few weeks ago that you were about to start a round of vidaza for 7 days. If you feel comfortable, how are you doing with that treatment?