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bunnysammy
@bunnysammy

Posts: 31
Joined: Jun 30, 2018

Let's just be free to rant: No known cause for my pain

Posted by @bunnysammy, Jul 2, 2018

Hi. I’m 20 years old and haven’t figured out the cause of my pain yet. This is the first place I’ve found with people I can talk to who just get it. Everyday I wake up and I’m at the very least achy all over. Usually my joints are stiff and something they feel better later in the day and sometimes they get worse especially if I’m in the sun at all. My ankles swell most days… and yesterday I started getting burning in the tip of my thumb and numbness in others. Last night the pain got so bad in my right hand that I couldn’t even grasp a spoon and I had to cook dinner with my left. I’m 20!! I run a farm and this just hit me suddenly one day. I feel so useless sometimes. I know it’s not my fault but 3 months ago I was able to do everything (I hurt but not this bad) I was strong and now just a bit of work leaves me completely in pain, brain fog and dead tired. What is that???

REPLY

@gman007

Hi @bunnysammy. Like Gail, I am a volunteer mentor and by no exaggeration trained in anything relating to medicine. I would just ask one additional question to those posed by Gail. Have you removed a tic from your body any time in the last three months? It could have been even further back than that. I have a brother-in-law who lives on a small farm similar to what you describe and he contracted lyme disease and in SC we are being warned to carefully check ourselves and little ones for tics this summer as they are expected to be more numerous than usual. There is a simple blood test to check for the presence of the disease and there is no quick remedy. It is usually just time to let it recede from your body, I am actually not completely certain as to any treatment.
Good luck,
Gary

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@lioness I live in the mountains near big bear.

@gman007

Hi @bunnysammy. Like Gail, I am a volunteer mentor and by no exaggeration trained in anything relating to medicine. I would just ask one additional question to those posed by Gail. Have you removed a tic from your body any time in the last three months? It could have been even further back than that. I have a brother-in-law who lives on a small farm similar to what you describe and he contracted lyme disease and in SC we are being warned to carefully check ourselves and little ones for tics this summer as they are expected to be more numerous than usual. There is a simple blood test to check for the presence of the disease and there is no quick remedy. It is usually just time to let it recede from your body, I am actually not completely certain as to any treatment.
Good luck,
Gary

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@bunnysammy I too love the Mts. Our cabin in Pa.was in the Allegheny Mts and we vacation we in the Smokey Mts.

I know this may seem dramatic but I'm at the end of my rope… for now, I know I'll get stronger again. I feel like im dying. I don't know what's wrong with me and I'm in so much pain and no one around me seems to believe how extreme it is. Everyday I wake up and I don't know how I'm going to get through the day and yet I do. I feel so sick. After 15 mins of work I want to take a 2 hour nap and I get dizzy so dizzy. Everyone keeps telling me how healthy I am but how can I be when I feel like this? I keep a diary of my symptoms but lately I've been too exhausted to even write them out. I don't know how I'm going to deal with this forever.

Hi @bunnysammy
You'll notice that I merged your new discussion thread "This may be dramatic" to the discussion you started earlier and modified the title to "Let's just be free to rant: No known cause for my pain". I did this so that your story and the suggestions and followups would all be in one place. This will help members stay up-to-date on your investigations and progress, and be able to help you better along this journey as you and your health team try to figure out what is going on. Make sense?

Here is an update guys. @songbird62rs @gailb @parus @bonnieh

I saw a rheumatologist. She's really nice. We ran a bunch of tests and I'll hear back in a week. She thinks that I definitely have arthritis though.

@bunnysammy Thank you for the update. Will be awaiting the results. Will the tests determine what type of arthritis???

@parus

@bunnysammy Thank you for the update. Will be awaiting the results. Will the tests determine what type of arthritis???

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I think so. I don't know much about the tests. I know that we think it's autoimmune related and the only two autoimmune disorders I'm aware of that come with arthritis are rhumeatoid arthritis and I think arthritis is common with lupus. But that's just all I know. She mentioned doing like imagining of my back if the blood tests don't conclude anything certain cause she's concerned about arthritis in my back.

Hey guys, another update here. I got my blood work back. She says I tested positive for ANA and 3 rhumeatoid arthritis markers, one of them being quite high. She threw out both lupus and rhumeatoid arthritis being possibilities so we're going to do more testing to figure that out. I don't have much swelling in my joints though so I'm getting an MRI to see if that'll show some damage that we can't see. She's also worried about auto immune neuropathy so I'm going to see a neurologist too.

You sound like a candidate for Genesight testing. Information at info@assurexhealth.com. It's a gene test that tells you what drugs will work for you. Depression, anxiety drugs, stimulants, ie Wellbutrin etal. Also what pain drugs will work based on your genes. You ask them for a list of docs close to you who preform this service and go to one who does, they take a cheek swab and in about 2 weeks you have your results back. It alerts you to drug interactions you could have as well as what drugs in 3 or 4 classes will work for you based on how you metabolize them. It's new and it's nothing short of a miracle for folks who need meds like Cymbalta and Wellbutrin. Quit guessing because that's all you and your doc are doing and find out what will work for you. That website is info@assurexhealth.com. get there number and call them and ask them to email you a list of docs near you. Doctors can register for free and all it takes for them is a fifteen minute phone call. If your doc doesn't do it see one who does. Get your info and take it back to the doctor you have and like. When they see the info, they will come around. Good luck, do it!!!

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