1. < Chronic Pain

Let's just be free to rant: No known cause for my pain

Posted by bunnysammy @bunnysammy, Jul 2, 2018

Hi. I'm 20 years old and haven't figured out the cause of my pain yet. This is the first place I've found with people I can talk to who just get it. Everyday I wake up and I'm at the very least achy all over. Usually my joints are stiff and something they feel better later in the day and sometimes they get worse especially if I'm in the sun at all. My ankles swell most days... and yesterday I started getting burning in the tip of my thumb and numbness in others. Last night the pain got so bad in my right hand that I couldn't even grasp a spoon and I had to cook dinner with my left. I'm 20!! I run a farm and this just hit me suddenly one day. I feel so useless sometimes. I know it's not my fault but 3 months ago I was able to do everything (I hurt but not this bad) I was strong and now just a bit of work leaves me completely in pain, brain fog and dead tired. What is that???

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bunnysammy | @bunnysammy | Jul 3, 2018
In reply to @gman007 "Hi @bunnysammy. Like Gail, I am a volunteer mentor and by no exaggeration trained in anything..." + (show)
@gman007

Hi @bunnysammy. Like Gail, I am a volunteer mentor and by no exaggeration trained in anything relating to medicine. I would just ask one additional question to those posed by Gail. Have you removed a tic from your body any time in the last three months? It could have been even further back than that. I have a brother-in-law who lives on a small farm similar to what you describe and he contracted lyme disease and in SC we are being warned to carefully check ourselves and little ones for tics this summer as they are expected to be more numerous than usual. There is a simple blood test to check for the presence of the disease and there is no quick remedy. It is usually just time to let it recede from your body, I am actually not completely certain as to any treatment.
Good luck,
Gary

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Oo I hate ticks! Ive only seen one since moving to Cali and it wasn't on me. I think my last tick was when I was 15-16 back when I lived in the south. It's definitely a possibility to look into though since I saw one in my sink last week.

REPLY
bunnysammy | @bunnysammy | Jul 3, 2018
In reply to @bonnieh218 "This sounds just like my Fibromyalgia symptoms." + (show)
@bonnieh218

This sounds just like my Fibromyalgia symptoms.

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It's one of my suspicions. I'm sorry you have to go through this!

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bunnysammy | @bunnysammy | Jul 3, 2018
In reply to @gailb "@bunnysammy Thanks for your responses to my questions. They helped me understand your situation better. It's..." + (show)
@gailb

@bunnysammy

Thanks for your responses to my questions. They helped me understand your situation better. It's too bad that some doctors just dismiss the complaints of patients when the doctor doesn't know what's wrong or can't make a diagnosis. Yes, it sounds as if you need a new, more knowledgeable primary care practitioner.

I'm so glad to hear that you have already seen a neurologist who has ruled out brain tumors. I'm not sure that's all they do, but yours zeroed in on that. The rheumatologist is probably going to be the best diagnostician for your problems. I was wondering about a virus which might affect you if you get exposed while cleaning out barns. If you breathe in any dust with the virus in it, you could have been exposed. Be sure to ask your doctor about it. I'm also suspicious of the multiple supplements you are taking. Supplements are not regulated as far as their components or the way they are formulated. You may be taking something that is not working with your body. Last, the reaction you have to mosquitoe bites is a clue that you are allergic to their bites. You should be using a protective insect repellant. If you are using a repellant, you may be allergic to it.

I think I haven't been helpful in narrowing the possible causes of your health issues, but I hope you have some additional things to consider and to ask your rheumatologist about. Garry ' suggestion about Lyme disease is good. Also check out West Nile virus. Did you or have you had any fevers since your symptoms first started? I'm hoping you find the answers and resolution to your health problems @bunnysammy.

Gail
Volunteer Mentor

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Yeah I hadn't really thought about the manure dust until you asked. I'll definitely ask my doctor about that.
Luckily, I have a doctor specifically for vitamins and she only supplies me with good reliable supplements but if all else fails a process of elimination may be necessary. That's how I zeroed in on gluten being a big problem for me.

I try using essential oils for misquotes but it's not 100%. I may have to look into getting a real spray without deet.

Thank you:) your questions definitely got me thinking. Lyme disease is a good suggested. I'm not familiar with West Nile. I haven't had a high fever just had consistent low grade fevers that I know isn't my normal body temperature cause I use a basal thermometer every morning to get to know my cycle more but lately it's not telling me anything cause the temps aren't ranging the way they're supposed to. If that makes any sense.

REPLY
lioness | @lioness | Jul 3, 2018
In reply to @gman007 "Hi @bunnysammy. Like Gail, I am a volunteer mentor and by no exaggeration trained in anything..." + (show)
@gman007

Hi @bunnysammy. Like Gail, I am a volunteer mentor and by no exaggeration trained in anything relating to medicine. I would just ask one additional question to those posed by Gail. Have you removed a tic from your body any time in the last three months? It could have been even further back than that. I have a brother-in-law who lives on a small farm similar to what you describe and he contracted lyme disease and in SC we are being warned to carefully check ourselves and little ones for tics this summer as they are expected to be more numerous than usual. There is a simple blood test to check for the presence of the disease and there is no quick remedy. It is usually just time to let it recede from your body, I am actually not completely certain as to any treatment.
Good luck,
Gary

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@bunnysammy where do you live in California ?I live in Long Beach the only bugs I see here are roaches,ants and bedbugs not so many bedbugs now ?

REPLY
Gary, Alumni Mentor | @gman007 | Jul 4, 2018
In reply to @gman007 "Hi @bunnysammy. Like Gail, I am a volunteer mentor and by no exaggeration trained in anything..." + (show)
@gman007

Hi @bunnysammy. Like Gail, I am a volunteer mentor and by no exaggeration trained in anything relating to medicine. I would just ask one additional question to those posed by Gail. Have you removed a tic from your body any time in the last three months? It could have been even further back than that. I have a brother-in-law who lives on a small farm similar to what you describe and he contracted lyme disease and in SC we are being warned to carefully check ourselves and little ones for tics this summer as they are expected to be more numerous than usual. There is a simple blood test to check for the presence of the disease and there is no quick remedy. It is usually just time to let it recede from your body, I am actually not completely certain as to any treatment.
Good luck,
Gary

Jump to this post

@bunnysammy, The article I read about the increase said they were even a danger in heavily urban areas.

REPLY
bunnysammy | @bunnysammy | Jul 4, 2018
In reply to @gman007 "Hi @bunnysammy. Like Gail, I am a volunteer mentor and by no exaggeration trained in anything..." + (show)
@gman007

Hi @bunnysammy. Like Gail, I am a volunteer mentor and by no exaggeration trained in anything relating to medicine. I would just ask one additional question to those posed by Gail. Have you removed a tic from your body any time in the last three months? It could have been even further back than that. I have a brother-in-law who lives on a small farm similar to what you describe and he contracted lyme disease and in SC we are being warned to carefully check ourselves and little ones for tics this summer as they are expected to be more numerous than usual. There is a simple blood test to check for the presence of the disease and there is no quick remedy. It is usually just time to let it recede from your body, I am actually not completely certain as to any treatment.
Good luck,
Gary

Jump to this post

@lioness I live in the mountains near big bear.

REPLY
lioness | @lioness | Jul 4, 2018
In reply to @gman007 "Hi @bunnysammy. Like Gail, I am a volunteer mentor and by no exaggeration trained in anything..." + (show)
@gman007

Hi @bunnysammy. Like Gail, I am a volunteer mentor and by no exaggeration trained in anything relating to medicine. I would just ask one additional question to those posed by Gail. Have you removed a tic from your body any time in the last three months? It could have been even further back than that. I have a brother-in-law who lives on a small farm similar to what you describe and he contracted lyme disease and in SC we are being warned to carefully check ourselves and little ones for tics this summer as they are expected to be more numerous than usual. There is a simple blood test to check for the presence of the disease and there is no quick remedy. It is usually just time to let it recede from your body, I am actually not completely certain as to any treatment.
Good luck,
Gary

Jump to this post

@bunnysammy I too love the Mts. Our cabin in Pa.was in the Allegheny Mts and we vacation we in the Smokey Mts.

REPLY
bunnysammy | @bunnysammy | Jul 5, 2018

I know this may seem dramatic but I'm at the end of my rope... for now, I know I'll get stronger again. I feel like im dying. I don't know what's wrong with me and I'm in so much pain and no one around me seems to believe how extreme it is. Everyday I wake up and I don't know how I'm going to get through the day and yet I do. I feel so sick. After 15 mins of work I want to take a 2 hour nap and I get dizzy so dizzy. Everyone keeps telling me how healthy I am but how can I be when I feel like this? I keep a diary of my symptoms but lately I've been too exhausted to even write them out. I don't know how I'm going to deal with this forever.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 5, 2018

Hi @bunnysammy
You'll notice that I merged your new discussion thread "This may be dramatic" to the discussion you started earlier and modified the title to "Let's just be free to rant: No known cause for my pain". I did this so that your story and the suggestions and followups would all be in one place. This will help members stay up-to-date on your investigations and progress, and be able to help you better along this journey as you and your health team try to figure out what is going on. Make sense?

REPLY
bunnysammy | @bunnysammy | Jul 13, 2018

Here is an update guys. @songbird62rs @gailb @parus @bonnieh

I saw a rheumatologist. She's really nice. We ran a bunch of tests and I'll hear back in a week. She thinks that I definitely have arthritis though.

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