Let’s Go Walking! Join me for a virtual walking support group

Posted by Becky, Volunteer Mentor @becsbuddy, Feb 19 11:59am

Many of you living with cancer or an autoimmune disease, like me, deal with daily fatigue. You know that exercise is so important to your health, but it’s so hard. There’s always an excuse: it’s too cold or hot, it’s going to rain or it’s raining, or it’s snowy and icy, or I just don’t want to. I, too, have all these excuses, but I have a new rescue dog who wants to go out and who doesn’t care about my excuses! And I’ve got traction devices for my boots.

Now I just need a walking group who will keep me accountable. People who say, ‘let’s go for a walk.’

And I thought: What about my virtual friends on MayoClinicConnect? And Mayo Clinic has an easy 12-week walking program to get us started! Here’s the link:
Get walking with this 12-week walking schedule

So let’s form a virtual walking group. We can agree to walk every day and encourage each other through Connect. We can walk outdoors, in a mall, or in the red center, or in the hallways of our apartment building.

Who’s in? Who’s going to join me? Come on, Let’s Go Walking!

joined up kinda late(well, real late because it's 5/24 and this county in south-central Pa. is set to go into the cautionary yellow phase in ~4 days. I hope that your virtual walks on the beach in Hawaii were as lovely as they sound. I caught up w/ some of you by doing a "backward" read of posts during these last few long months. My fitness center will be opening on a limited basis on th 28th. So, I'm having dreams of swimming in the warm pool, which is so great on my arthritic knees, hips, etc. For Becky Leonard…I hope that you're feeling healthy & strong. I'm planning to keep up w/ you guys & it sounds like a fun bunch.

REPLY
@becsbuddy

To everyone talking about rouvastatin and other statins, please check out this discussion:
https://connect.mayoclinic.org/discussion/statins-and-peripheral-neuropathy/?pg=1#comment-312571
They are all discussing pros/cons of statins

Jump to this post

@becsbuddy, Becky, Thanks for posting this site: https://connect.mayoclinic.org/discussion/statins-and-peripheral-neuropathy/?pg=1#comment-312571

I have taken Lipitor for years for high cholesterol and along with diet, I’m managing to stay within normal ranges. However, my stroke added Plavix and aspirin 81 to my daily med regimen. More recently, periphereal neuropathy, pre-diabetes and kidney damage diagnoses followed. Until the last three, I never researched prescribed meds nor searched for ways to better control my issues.

It seems only natural that approaching age 80 would lead to more health issues and for me it becomes a task of weighing risks with rewards. The medical cocktail I take includes meds for chronic bronchitis/COPD and osteoporisis which can interfere with other meds. Do I want to breathe? Risk another stroke or bone break? Suffer complications of diabetes and p.n. or take them all and “takes my chances” ? vbg

Scanning further down posts, I noted this one in particular regarding statin side effects on various conditions: : https://www.mayoclinic.org/diseases-conditions/high-blood-cholesterol/in-depth/statin-side-effects/art-20046013?_ga=2.32578617.685487692.1588807088-1229333082.1573340414

These stated risks apply to me: • Taking multiple medications to lower your cholesterol • Being female • Having a smaller body frame • Being (Nearly) age 80 or older • Having kidney or liver disease

Although I keep buying larger pill boxes for my daily meds, I am happy to report that I’m still movin’ and looking forward to more days of happy pleasures. I accept that each med. I take may have some negative effect on some function; however, I am thankful that they appear to be doing more good than ill. How do others here make decisions in weighing the pros and cons of new prescriptions or side effects from taking them?

REPLY
@katiejo59

joined up kinda late(well, real late because it's 5/24 and this county in south-central Pa. is set to go into the cautionary yellow phase in ~4 days. I hope that your virtual walks on the beach in Hawaii were as lovely as they sound. I caught up w/ some of you by doing a "backward" read of posts during these last few long months. My fitness center will be opening on a limited basis on th 28th. So, I'm having dreams of swimming in the warm pool, which is so great on my arthritic knees, hips, etc. For Becky Leonard…I hope that you're feeling healthy & strong. I'm planning to keep up w/ you guys & it sounds like a fun bunch.

Jump to this post

Hi @katiejo59 I see you are somewhat new to Connect so welcome!

I have no idea when my health club will reopen but I have been thinking about it a lot, the pool and the gym. I was thinking I could at least do the pool probably but then it occurred to me that I would need to use the locker/changing rooms also. I will be very interested in hearing how you manage that when you return to your fitness center. I really need to get back to mine but I'm afraid it will be a very long time until I will be able to.
JK

REPLY
@fiesty76

@becsbuddy, Becky, Thanks for posting this site: https://connect.mayoclinic.org/discussion/statins-and-peripheral-neuropathy/?pg=1#comment-312571

I have taken Lipitor for years for high cholesterol and along with diet, I’m managing to stay within normal ranges. However, my stroke added Plavix and aspirin 81 to my daily med regimen. More recently, periphereal neuropathy, pre-diabetes and kidney damage diagnoses followed. Until the last three, I never researched prescribed meds nor searched for ways to better control my issues.

It seems only natural that approaching age 80 would lead to more health issues and for me it becomes a task of weighing risks with rewards. The medical cocktail I take includes meds for chronic bronchitis/COPD and osteoporisis which can interfere with other meds. Do I want to breathe? Risk another stroke or bone break? Suffer complications of diabetes and p.n. or take them all and “takes my chances” ? vbg

Scanning further down posts, I noted this one in particular regarding statin side effects on various conditions: : https://www.mayoclinic.org/diseases-conditions/high-blood-cholesterol/in-depth/statin-side-effects/art-20046013?_ga=2.32578617.685487692.1588807088-1229333082.1573340414

These stated risks apply to me: • Taking multiple medications to lower your cholesterol • Being female • Having a smaller body frame • Being (Nearly) age 80 or older • Having kidney or liver disease

Although I keep buying larger pill boxes for my daily meds, I am happy to report that I’m still movin’ and looking forward to more days of happy pleasures. I accept that each med. I take may have some negative effect on some function; however, I am thankful that they appear to be doing more good than ill. How do others here make decisions in weighing the pros and cons of new prescriptions or side effects from taking them?

Jump to this post

@fiesty76… My sentiments exactly. I have never taken any meds until I went back to work after a nasty divorce and I had to go back to work in my 40s. The job was a very stressful one and I was put on hypertension drugs. I managed my cholesterol with lifestyle changes. Fast forward to beginning of this year when I had TIA, and right away, my cardiologist put me on Xeralto, I had a loop recorder to check fir afib.. So far no indication that I have that. And in addition, I was put on statin even though my lipid level is not high. I read about all the bad side effects of statin. I'm 5'3" and weigh 104 lbs, so I fall in the small body frame category. My legs have been hurting very bad and I start to wonder if it's not the statin (I've try 3 so far) but that I may have PN or even PAD. It's very frustrating. I'm sure my cardiologist thinks I am a hypochondriac. My father and brother both died of strokes at an early age, so I am very aware of it. I eat very healthy, and I walk everyday. But my leg pain makes it harder and harder. Thinking back 10 years ago, I was hiking and feeling great. Now I'm getting depressed over my health. My cardiologist would not even entertain my suggestion of lowering my cholesterol with supplements. I've done it before. He doesn't think I should risk having a stroke, the same with the blood thinner. What should I do???

REPLY
@fiesty76

@contentandwell, Thanks for your experience with the New Balance sneakers,JK. With my severe osteoporisis, balance and not falling are big priorities in my life. This was so unnerving that I tossed my pr. immediately. Will check out the ABEO and Sketchers when I resume instore shopping.

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@fiesty76 I went to a Walking Company store and looked at a number of different sneakers, and they had me walk over a mat that is supposed to tell them if I need an orthotic other than neutral. They found that I did, at two different stores. The sneakers that I liked were expensive (@$170) so I went home to think about it and looked at their online website. They had a style that was discontinued for significantly less money, I think it was around $105, so I ordered them with the recommended orthotic.

The orthotic really made my foot hurt, I thought I might have plantar fasciitis. By the time I called them about it, it was just beyond a month so they didn't want to replace the orthotic even though they were what had been recommended in two different of their stores and they were causing me significant foot pain. They then agreed to a discount on my purchasing them. I am not usually that "feisty" but I said I didn't want their 30% discount, I wanted a 100% discount since it was their sales associates who convinced me to purchase these. They finally agreed to that and sent out the neutral orthotics and I have been very happy with the shoes since then. If I recall, the orthotic insole is about $70, so it's not like a $15 insole.

So, get measured and walk over their sensitive pad, but if you do not feel you need an orthotic then go neutral.
JK

REPLY
@contentandwell

@fiesty76 I went to a Walking Company store and looked at a number of different sneakers, and they had me walk over a mat that is supposed to tell them if I need an orthotic other than neutral. They found that I did, at two different stores. The sneakers that I liked were expensive (@$170) so I went home to think about it and looked at their online website. They had a style that was discontinued for significantly less money, I think it was around $105, so I ordered them with the recommended orthotic.

The orthotic really made my foot hurt, I thought I might have plantar fasciitis. By the time I called them about it, it was just beyond a month so they didn't want to replace the orthotic even though they were what had been recommended in two different of their stores and they were causing me significant foot pain. They then agreed to a discount on my purchasing them. I am not usually that "feisty" but I said I didn't want their 30% discount, I wanted a 100% discount since it was their sales associates who convinced me to purchase these. They finally agreed to that and sent out the neutral orthotics and I have been very happy with the shoes since then. If I recall, the orthotic insole is about $70, so it's not like a $15 insole.

So, get measured and walk over their sensitive pad, but if you do not feel you need an orthotic then go neutral.
JK

Jump to this post

@contentandwell.. I have been having trouble finding shoes too. My daughter gave me a very generous gift certificate to Zappos, the online shoes store. The deliver free and return is free too. The have tons of shoes, but if you know what brand you like and the style, it's a good way to shop. On some models, not all, you can even use it for 30 days and if you are not happy, send them back (free shipping back) and you'll get a refund. I had a pair that I wore over 30 days and only just found out that my shoes fall into that category but they still take it back. Their customer service is wonderful. They sell also dress shoes, insoles etc. And they have wide and extra wide width, which are hard to find in stores.

REPLY
@mayofeb2020

@fiesty76… My sentiments exactly. I have never taken any meds until I went back to work after a nasty divorce and I had to go back to work in my 40s. The job was a very stressful one and I was put on hypertension drugs. I managed my cholesterol with lifestyle changes. Fast forward to beginning of this year when I had TIA, and right away, my cardiologist put me on Xeralto, I had a loop recorder to check fir afib.. So far no indication that I have that. And in addition, I was put on statin even though my lipid level is not high. I read about all the bad side effects of statin. I'm 5'3" and weigh 104 lbs, so I fall in the small body frame category. My legs have been hurting very bad and I start to wonder if it's not the statin (I've try 3 so far) but that I may have PN or even PAD. It's very frustrating. I'm sure my cardiologist thinks I am a hypochondriac. My father and brother both died of strokes at an early age, so I am very aware of it. I eat very healthy, and I walk everyday. But my leg pain makes it harder and harder. Thinking back 10 years ago, I was hiking and feeling great. Now I'm getting depressed over my health. My cardiologist would not even entertain my suggestion of lowering my cholesterol with supplements. I've done it before. He doesn't think I should risk having a stroke, the same with the blood thinner. What should I do???

Jump to this post

Hello Happy Memorial Day,
My mother was a healthy senior, then
her doctor put her on statins, after 5 days pain in the legs and hips. She stopped walking any distance.
Another doctor took her off the statin said after 80-83 I do not recommend them, as side affects are too great in the over 80 group.
She was 5’5” weight about 110 or so.
Statins can also cause foggy brain.
Mom lived to 92,was glad she was off the Rx as she was able to walk small distance again.meicine affects everybody differently, what is good for one is poison to another.
Do you still have a loop recorder?
The people I know with afib would only allow an event recorder, and said no to the loop recorder procedure.
I guess it depends on your doctor preference,and patient age.
My mother felt better just seeing a internal medicine doctor, and quit the cardiologist.
These are decisions we make for ourselves.
To good health
Funcountess

REPLY
@funcountess

Hello Happy Memorial Day,
My mother was a healthy senior, then
her doctor put her on statins, after 5 days pain in the legs and hips. She stopped walking any distance.
Another doctor took her off the statin said after 80-83 I do not recommend them, as side affects are too great in the over 80 group.
She was 5’5” weight about 110 or so.
Statins can also cause foggy brain.
Mom lived to 92,was glad she was off the Rx as she was able to walk small distance again.meicine affects everybody differently, what is good for one is poison to another.
Do you still have a loop recorder?
The people I know with afib would only allow an event recorder, and said no to the loop recorder procedure.
I guess it depends on your doctor preference,and patient age.
My mother felt better just seeing a internal medicine doctor, and quit the cardiologist.
These are decisions we make for ourselves.
To good health
Funcountess

Jump to this post

@funcountess. I still have the loop recorder. I will discuss with my doctor about taking it out eventually, not now with what's going on. I've had it for 5 months now, no afib. After my TIA, he just wants to make sure I don't have afib. As for statin, I read about the brain fog side effect so I'm taking Coq10, it is supposed to help with muscle as well. My appointment with the cardiologist is in September and maybe I'll get a blood test before that so we can discuss more about this. My primary physician never pressed me on statin because my numbers are good.

REPLY
@fiesty76

@becsbuddy, Becky, Thanks for posting this site: https://connect.mayoclinic.org/discussion/statins-and-peripheral-neuropathy/?pg=1#comment-312571

I have taken Lipitor for years for high cholesterol and along with diet, I’m managing to stay within normal ranges. However, my stroke added Plavix and aspirin 81 to my daily med regimen. More recently, periphereal neuropathy, pre-diabetes and kidney damage diagnoses followed. Until the last three, I never researched prescribed meds nor searched for ways to better control my issues.

It seems only natural that approaching age 80 would lead to more health issues and for me it becomes a task of weighing risks with rewards. The medical cocktail I take includes meds for chronic bronchitis/COPD and osteoporisis which can interfere with other meds. Do I want to breathe? Risk another stroke or bone break? Suffer complications of diabetes and p.n. or take them all and “takes my chances” ? vbg

Scanning further down posts, I noted this one in particular regarding statin side effects on various conditions: : https://www.mayoclinic.org/diseases-conditions/high-blood-cholesterol/in-depth/statin-side-effects/art-20046013?_ga=2.32578617.685487692.1588807088-1229333082.1573340414

These stated risks apply to me: • Taking multiple medications to lower your cholesterol • Being female • Having a smaller body frame • Being (Nearly) age 80 or older • Having kidney or liver disease

Although I keep buying larger pill boxes for my daily meds, I am happy to report that I’m still movin’ and looking forward to more days of happy pleasures. I accept that each med. I take may have some negative effect on some function; however, I am thankful that they appear to be doing more good than ill. How do others here make decisions in weighing the pros and cons of new prescriptions or side effects from taking them?

Jump to this post

Have you ever heard the expression BETWEEN A ROCK AND A HARD PLACE with Rx, you weigh the good with the bad.
Personally The newerRx seem to have more side affects then older Rx does.
Can you get off statins, or lower dosage? Maybe watch diet more?
It was once said by a well known doctor, that doctors prescribe so much Rx is because patients want to walk out of office with a prescription in their hand.
There is a lot of truth to that.
Funcountess

REPLY
@mayofeb2020

@contentandwell.. I have been having trouble finding shoes too. My daughter gave me a very generous gift certificate to Zappos, the online shoes store. The deliver free and return is free too. The have tons of shoes, but if you know what brand you like and the style, it's a good way to shop. On some models, not all, you can even use it for 30 days and if you are not happy, send them back (free shipping back) and you'll get a refund. I had a pair that I wore over 30 days and only just found out that my shoes fall into that category but they still take it back. Their customer service is wonderful. They sell also dress shoes, insoles etc. And they have wide and extra wide width, which are hard to find in stores.

Jump to this post

@mayofeb2020 I wish I had a dollar for every person I have heard of with leg cramps from statins – going all the way back to my Dad over 20 years ago…
I have "borderline" cholesterol, but good HDL and low body weight, family history of heart disease, stroke… tried one statin over 10 years ago and got leg pain – ironically at the same time as my Mom and her sister – we all stopped them and I will never go back. By the way, both women died well into their 80's of causes completely unrelated to stroke, which was the reason for them starting. I keep listening and reading, and I'm still not convinced the side effects are worth it, so I eat healthy and exercise. (By the way, this refusal comes from someone who endured a year and a half of gruesome antibiotice regime for mycobacteria pneumonia, and has rehabbed from a dozen orthopedic surgeries for arthritis, so I don't think I'm a wimp…)

You were asking what to do – have you considered consulting another cardiologist? Maybe one who is open to alternative therapies?

Sue

REPLY
@mayofeb2020

@funcountess. I still have the loop recorder. I will discuss with my doctor about taking it out eventually, not now with what's going on. I've had it for 5 months now, no afib. After my TIA, he just wants to make sure I don't have afib. As for statin, I read about the brain fog side effect so I'm taking Coq10, it is supposed to help with muscle as well. My appointment with the cardiologist is in September and maybe I'll get a blood test before that so we can discuss more about this. My primary physician never pressed me on statin because my numbers are good.

Jump to this post

Hi,
Two doctors, two different opinions on statins.
Very common.
Has your mind been o.k. With the statins? No brain fog?
We all need to be our own advocate.
As long as you are feeling well.that is Important.
Funcountess

REPLY
@funcountess

Have you ever heard the expression BETWEEN A ROCK AND A HARD PLACE with Rx, you weigh the good with the bad.
Personally The newerRx seem to have more side affects then older Rx does.
Can you get off statins, or lower dosage? Maybe watch diet more?
It was once said by a well known doctor, that doctors prescribe so much Rx is because patients want to walk out of office with a prescription in their hand.
There is a lot of truth to that.
Funcountess

Jump to this post

@funcountess… The statin he prescribed is 5 mg. The lowest dosage. I do not like taking any meds. I changed doctor once because he used to work for big pharma before becoming a doctor so every time I go there, he wanted to give me a prescription. I have always been a healthy eater, no fast food, no sugary stuff, low sodium, lots of vegetables . No alcohol, no caffeine, no smoking. No beef for a long time, lots of salmon, sardines etc. If I hadn't had the TIA, I would not be on statin or blood thinner.

REPLY
@sueinmn

@mayofeb2020 I wish I had a dollar for every person I have heard of with leg cramps from statins – going all the way back to my Dad over 20 years ago…
I have "borderline" cholesterol, but good HDL and low body weight, family history of heart disease, stroke… tried one statin over 10 years ago and got leg pain – ironically at the same time as my Mom and her sister – we all stopped them and I will never go back. By the way, both women died well into their 80's of causes completely unrelated to stroke, which was the reason for them starting. I keep listening and reading, and I'm still not convinced the side effects are worth it, so I eat healthy and exercise. (By the way, this refusal comes from someone who endured a year and a half of gruesome antibiotice regime for mycobacteria pneumonia, and has rehabbed from a dozen orthopedic surgeries for arthritis, so I don't think I'm a wimp…)

You were asking what to do – have you considered consulting another cardiologist? Maybe one who is open to alternative therapies?

Sue

Jump to this post

Hi Sue,
I’m with you on this one. I to think too much pill popping is going on.people think a magic,pill for this and a magic pill for that. All that magic is still a CHEMICAL.
I come from a long line of medical professionals, and have been to many medical conventions thru the years.
One of my uncles would say “ what I prescribe for my patients, is not the same as i would prescribe for my family.” My other uncle was a pharmacist, and he would always say
Pills are not always the answer, but I fill prescriptions be cause that is my profession.
Kind of makes you wonder?
Funcountess

Liked by pollyanne

REPLY
@contentandwell

@fiesty76 I went to a Walking Company store and looked at a number of different sneakers, and they had me walk over a mat that is supposed to tell them if I need an orthotic other than neutral. They found that I did, at two different stores. The sneakers that I liked were expensive (@$170) so I went home to think about it and looked at their online website. They had a style that was discontinued for significantly less money, I think it was around $105, so I ordered them with the recommended orthotic.

The orthotic really made my foot hurt, I thought I might have plantar fasciitis. By the time I called them about it, it was just beyond a month so they didn't want to replace the orthotic even though they were what had been recommended in two different of their stores and they were causing me significant foot pain. They then agreed to a discount on my purchasing them. I am not usually that "feisty" but I said I didn't want their 30% discount, I wanted a 100% discount since it was their sales associates who convinced me to purchase these. They finally agreed to that and sent out the neutral orthotics and I have been very happy with the shoes since then. If I recall, the orthotic insole is about $70, so it's not like a $15 insole.

So, get measured and walk over their sensitive pad, but if you do not feel you need an orthotic then go neutral.
JK

Jump to this post

@contentandwell I was measured for my orthotics and my podiatrist fitted me. I have never had any trouble with them except they are wearing out and I need to see the podiatrist again. I had some orthotics once before from a company that did this for a living and they measured me and looked at my gait etc and I picked up the orthotics a week later. However I had nothing but trouble with them. I had 2 toes that went numb and it took a couple of years for them to come back to life. The orthotics were too rigid amongst other things. Tthey do tell you to gradually wear new orthotics for a longer amount of time so you get used to them slowly. If you wear new orthotics for too long right away you can have problems just from doing that.

REPLY
@funcountess

Have you ever heard the expression BETWEEN A ROCK AND A HARD PLACE with Rx, you weigh the good with the bad.
Personally The newerRx seem to have more side affects then older Rx does.
Can you get off statins, or lower dosage? Maybe watch diet more?
It was once said by a well known doctor, that doctors prescribe so much Rx is because patients want to walk out of office with a prescription in their hand.
There is a lot of truth to that.
Funcountess

Jump to this post

@funcountess So true!

REPLY
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