Lenvima & Keytruda and extreme hoarseness of voice

Posted by roulaocchi @roulaocchi, Apr 10 2:15pm

For those on Lenvima, 12 mg, and Keytruda, every 21 days, have you experienced such extreme wholeness to the point that you are talking so low that others are having a hard time hearing you? If so, how long did it last and does it get better? I realize that the number one side effect of Lenvima is hoarseness.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Colleen Young, Connect Director | @colleenyoung | Apr 18 6:01pm

I’m tagging @cookercooker @paula21 and @rainna who have experience with pembrolizumab (Keytruda) and lenvatinib (Lenvima) and may have thoughts to add.

@roulaocchi, how are you doing?

roulaocchi | @roulaocchi | Apr 22 1:45pm

Thank you for asking - I am more hoarse than ever. I am very very very weak but my 3rd round before imaging is 4/28 so I am holding on until then since my CA125 markers went from over 600 (starting) to just over 300 and then to 136. New symptoms are vomiting on and off depending on what I eat and a fine line between awful diarrhea and constipation.