That's wonderful to hear that you've had no further issues!
May I ask for how long you did the watchful waiting scans? How many years, and still no further issues?
Alternating mammos with MRI's? Or something else?
Did you have any biopsies in all that time (if so, that I assume were clear)?
I'm personally worried about all the scans, every six months. And more biopsies. Much too anxiety producing for me.
Hello. In September last year, I was diagnosed with lobular invasive carcinoma in my left breast, not as common as the ductal cancers of the breast. Is that the diagnosis you received? I had a mastectomy and found 29 lymph nodes had been invaded, a tremendous number! Such a slow and sneaky cancer! Hard to detect early. I’ve done oral chemo, radiation, an anaromatase inhibitor (letrozole) and am getting infusions for bone protection every 6 months. Scan found no more cancer but doctors are wary. Me too. I feel well now and also understand the importance of exercise more than ever. Keep moving! Let us know how your treatment goes. Many hugs to you!
Last week (4/17/24) I had my second lumpectomy to remove PLCIS (pleomorphic lobular carcinoma in situ). A small tumor (2 mm) of invasive lobular carcinoma was removed during the first lumpectomy (2/7/24), but the margins were not clear of PLCIS, indicating a second lumpectomy. Unfortunately the PLCIS is less than 1 mm from the new true margin. I will see what my surgeon recommends, but I am worried that this means another lumpectomy or mastectomy. Has anyone had a similar experience with PLCIS?
I just got diagnosed with LCIS this March of 2024, in my right breast. The breast surgeon is recommending lumpectomy followed by a visit to the oncologist to start preventive cancer medicine followed by mammograms/sonograms and mri’s testing every 6 months to a year. My boyfriend feels like I should get a mastectomy to just be done with the whole situation. I’m not quite sure what to do. I’m not crazy about taking medicine that might create side effects down the road or constantly running to the doctor every 6 months or so. Especially when other things can still pop up later. But I’m not sure what a mastectomy would look like (and feel like) for me. It doesn’t seem like the most popular thing to do, why not? Is this too dramatic thing to do?
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@lc1sp123, have you heard the term "scanxiety". It's a real thing. You are not alone and may appreciated the tips members offer in these related discussions:
- Scanxiety: How did you get through scanxiety?
https://connect.mayoclinic.org/discussion/scanxiety/
- How can I defeat my anxiety about medical tests and surgery? https://connect.mayoclinic.org/discussion/how-can-i-defeat-my-anxiety-about-medical-tests-and-surgery/
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1 ReactionHello. In September last year, I was diagnosed with lobular invasive carcinoma in my left breast, not as common as the ductal cancers of the breast. Is that the diagnosis you received? I had a mastectomy and found 29 lymph nodes had been invaded, a tremendous number! Such a slow and sneaky cancer! Hard to detect early. I’ve done oral chemo, radiation, an anaromatase inhibitor (letrozole) and am getting infusions for bone protection every 6 months. Scan found no more cancer but doctors are wary. Me too. I feel well now and also understand the importance of exercise more than ever. Keep moving! Let us know how your treatment goes. Many hugs to you!
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Like -
Helpful -
Hug
2 ReactionsLast week (4/17/24) I had my second lumpectomy to remove PLCIS (pleomorphic lobular carcinoma in situ). A small tumor (2 mm) of invasive lobular carcinoma was removed during the first lumpectomy (2/7/24), but the margins were not clear of PLCIS, indicating a second lumpectomy. Unfortunately the PLCIS is less than 1 mm from the new true margin. I will see what my surgeon recommends, but I am worried that this means another lumpectomy or mastectomy. Has anyone had a similar experience with PLCIS?
-
Like -
Helpful -
Hug
1 ReactionI just got diagnosed with LCIS this March of 2024, in my right breast. The breast surgeon is recommending lumpectomy followed by a visit to the oncologist to start preventive cancer medicine followed by mammograms/sonograms and mri’s testing every 6 months to a year. My boyfriend feels like I should get a mastectomy to just be done with the whole situation. I’m not quite sure what to do. I’m not crazy about taking medicine that might create side effects down the road or constantly running to the doctor every 6 months or so. Especially when other things can still pop up later. But I’m not sure what a mastectomy would look like (and feel like) for me. It doesn’t seem like the most popular thing to do, why not? Is this too dramatic thing to do?