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Has anyone had late recurrence kidney cancer?
Has anyone had late recurrence kidney cancer? I am 56 and was diagnosed 10 years ago with RCC stage 1b grade 2, my kidney was removed. All the doctors I talked with said it wouldn’t come back. I recently went to a Urologist who said the same thing but ordered a CT scan and it came back with 3 tumors, The three tumors are 2cm, 1.8cm and 1cm. Had biopsy done and confirmed RCC. Stage 2. They also found a mass in my pancreatic tail that is 3cm. With only one kidney just worried about protecting the function. I have an appointment with a radiologist about ablation. Has anyone had experience with a solitary kidney developing kidney cancer?
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Im sorry you're experiencing a recurrence! Kidney Cancer can take decades to re-raise its ugly head unfortunately. Im now a lifetime patient at Mayo, twice yearly visits for checks, due to being categorized as an Intermediate Risk after they successfully got the 2 malignancies 2 yrs ago.
I will be watching how your appts go, if you are willing to keep us updated. I know, its a scary thing, but keep on it!💜
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2 ReactionsI am sorry about this. 10 years is a long time! I cant offer any experience with this. I would say any time masses found that are small is good news. I know they will do everything to preserve your kidney function. I will be having radical nephrectomy July 6th for a 6cm RCC. Already CKD Stage 3a. I do not have metastasis on chest CT. Keytruda infusions may be done after pathology. Immunosuppressants were not around 10 yrs. ago. Research about them. Side effects , possible. It turns on your own immunity to,seek and find any hidden cancer cells in your body Renal cancer "hides" disguises itself , so your regular immunity isnt fighting it. There are different kinds, other than Keytruda . I am a 60 yr old F and not a medical person. Be positive as possible. I know this was a shock for you. Prayers have been answered more than once since this began. Ask for guidance, healing, and help with the anxiety. 🙏 for your best outcome!
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1 Reaction@krhine23, that must've been a real shock to find out that the cancer had come back. After 10 years, I can imagine you thought you were out of the woods.
I hope you saw the helpful replies from @quirky9 and @gangcarotid1. I can understand your concern about protecting the function of the remaining kidney. @agadeb and @ebdent88 may also have experiences to add.
@krhine23, did they confirm that the mass on the pancreas is also kidney cancer? Have you had your appointment with the radiation oncologist? What are next steps for you?
@colleenyoung
Going to do a biopsy the pancreas mass to confirm either kidney cancer metastasis in the pancreas or possibly a net tumor. I just did a Pet scan a few days ago and there is two small areas of bone metastasis. Switching now to a drug treatment protocol, not sure which one yet and radiation for the bone areas. It’s a lot to take in but hopefully since the cancer seems to be a lower grade it may be more manageable.