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davearnatt
@davearnatt

Posts: 11
Joined: Dec 19, 2016

Laryngopharyngeal Reflux (LRP) - severity and outlook?

Posted by @davearnatt, Jan 9, 2017

I have had LPR / reflux for about 5 years and have made the normal lifestyle changes (diet, bed, etc) which reduced symptoms slightly. PPIs do not seem to help so we suspect pepsin rather than acid. The severity of symptoms changes over time with throat “experiences” occuring roughly as follows:

No problem (10%)
Cold feeling like finishing a breath mint (30%)
Like a mild burn from food + tightness (40%)
Moderate to intense pain/redness (20%)

By now, the odds of resolving this seem remote. My doctor talked about me entering “another phase” which feels like it will get worse. My questions:

1. Does anyone have any feedback/experience about the potential impact of this type of continual inflammation leading to severe problems including cancer? Is it possible that just learning to live with this is an option that will not end with something awful?

2. Does anyone have any experience/feedback on surgery options besides classic Nissen fundoplication? I have read about Linx (magnetic ring) and partial (270 degree) fundoplication.

Thank you for any advise or help you can offer!

REPLY

@cab26

I have been diagnosed, several years ago, with LPR. I am currently taking 40 MG Omeprozole twice a day and 300 mg of Randitinine and still experiencing reflux. My ENT and my GI doctors said I was a candidate for the LINX Procedure since the medicine, high doses, is not stopping the reflux. I’m also concerned about the side effects the medicine can have on my body. How many procedures has the Mayo Clinic done with the LINX Procedure?

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Would I still be a candidate for Lyns I had an Esophagogasttroducdemoscopy on 3/2017 and the findings were:
1. HYPOPHARYNX: Stenosis WASFOUND in the cricopharyngeus.
2. A hiatus hernia was found i the GE junction.
3. Mild gastritis was found in the antrum. two biopsies taken
4. Normal duodenum.

4/2017. Results of Esopagram
1. Esophageal dysmotility

6/8/2017 Manometry Study
1. Disphagia

I have a demeister score of 4.6 with severe reflux and spastic esophagus.

I meant to say my demiester score is 34.6

@cab26

I have been diagnosed, several years ago, with LPR. I am currently taking 40 MG Omeprozole twice a day and 300 mg of Randitinine and still experiencing reflux. My ENT and my GI doctors said I was a candidate for the LINX Procedure since the medicine, high doses, is not stopping the reflux. I’m also concerned about the side effects the medicine can have on my body. How many procedures has the Mayo Clinic done with the LINX Procedure?

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My demeister score is 34.6

@cab26

I have been diagnosed, several years ago, with LPR. I am currently taking 40 MG Omeprozole twice a day and 300 mg of Randitinine and still experiencing reflux. My ENT and my GI doctors said I was a candidate for the LINX Procedure since the medicine, high doses, is not stopping the reflux. I’m also concerned about the side effects the medicine can have on my body. How many procedures has the Mayo Clinic done with the LINX Procedure?

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Hi @cab26,

I’m tagging @squaredancer @bergem @pattitoo as they have shared their experiences withe esophageal issues and EGD or Esophagogastroduodenoscopy. You can view their and other members’ conversation here:
– Esophagus issues https://connect.mayoclinic.org/discussion/esophagus-issues/

@cab26

I have been diagnosed, several years ago, with LPR. I am currently taking 40 MG Omeprozole twice a day and 300 mg of Randitinine and still experiencing reflux. My ENT and my GI doctors said I was a candidate for the LINX Procedure since the medicine, high doses, is not stopping the reflux. I’m also concerned about the side effects the medicine can have on my body. How many procedures has the Mayo Clinic done with the LINX Procedure?

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Thank you.

I have some of the same concerns. My throat and mouth burn continuously about 90% of the time and I fear what continuous inflammation is doing to me. When i lay down at night the burning intensifies. Any suggestions?

@destinnana Only one quick one. Find a way to raise the head of your bead about 8-10 inches. Use blocks, whatever. I use wood blocks I gathered. Sleep much better. So does my wife. And I eat nothing within two hours of bedtime.

@oldkarl

@destinnana Only one quick one. Find a way to raise the head of your bead about 8-10 inches. Use blocks, whatever. I use wood blocks I gathered. Sleep much better. So does my wife. And I eat nothing within two hours of bedtime.

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I have no problem when I sleep on my stomach. PPI's don't work. I feel like I have a constantly stuffed sinuses coming from my Esophagus. When I lay on my stomach for an hour or less, it subsides. Raising the bed doesn't work for LPR. It doesn't alleviate it when standing. ptfitzy

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