Large right sphenoid wing meningioma

Posted by babs1121 @babs1121, 1 day ago

Diagnosed 10/23, had several consults. MRI's show measurable growth, and "extensive active dural tail". Still "watching & waiting" despite symptoms that are affecting my quality of life. Two neurosurgeons recommended immediate removal. My current neurosurgeon still desires to watch & wait. Feeling gaslight. Afraid to tell him things that are going on because I do not want to be a "problem patient". He says my symptoms are due to history of anxiety. This is different. Vision issues, bilateral motor skill and language issues. Sometimes I don't know if I'm having a seizure or stroke, w/ numbness and muscle spasms. I'm female, 54. Tumor is "large lemon", mass effect, 3mm crossing mid-line. Anyone?

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babs1121 | @babs1121 | 1 day ago

I meant to say "feeling gaslit" re anxiety history. And to clarify, all consults and current neurosurgeon say complete removal isn't possible. Only "debulking". So many questions. So many different answers. Feeling lost, frozen.

Maryann | @mkoch | 15 hours ago

You need to find a neurosurgeon you feel listens to you and you are comfortable with. You state that your meningioma is "large lemon." You wrote it is 3 millimeters but is that a typo and it is actually 3 centimeters?
Just want to clarify before I weigh in.

jbaumgarten6 | @jbaumgarten6 | 14 hours ago

I agree with the last comment about finding the right brain surgeon immediately. My personal advice is someone that can map the precise location using and MRI GRAPHS of the exact location of the tumor. Whether or not the tumor is extractable or not that would be left to the surgeons discretion. They will need a biopsy or a portion of the tumor to determine what type of cancer it is! From that point on, you are placed in postoperative recovery unit and a month later after surgery, radiation and chemotherapy depending on what they discover from the Lab.