Large right sphenoid wing meningioma: Surgery or Watch & Wait?

Posted by babs1121 @babs1121, Aug 4 5:38pm

Diagnosed 10/23, had several consults. MRI's show measurable growth, and "extensive active dural tail". Still "watching & waiting" despite symptoms that are affecting my quality of life. Two neurosurgeons recommended immediate removal. My current neurosurgeon still desires to watch & wait. Feeling gaslight. Afraid to tell him things that are going on because I do not want to be a "problem patient". He says my symptoms are due to history of anxiety. This is different. Vision issues, bilateral motor skill and language issues. Sometimes I don't know if I'm having a seizure or stroke, w/ numbness and muscle spasms. I'm female, 54. Tumor is "large lemon", mass effect, 3mm crossing mid-line. Anyone?

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I meant to say "feeling gaslit" re anxiety history. And to clarify, all consults and current neurosurgeon say complete removal isn't possible. Only "debulking". So many questions. So many different answers. Feeling lost, frozen.

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You need to find a neurosurgeon you feel listens to you and you are comfortable with. You state that your meningioma is "large lemon." You wrote it is 3 millimeters but is that a typo and it is actually 3 centimeters?
Just want to clarify before I weigh in.

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I agree with the last comment about finding the right brain surgeon immediately. My personal advice is someone that can map the precise location using and MRI GRAPHS of the exact location of the tumor. Whether or not the tumor is extractable or not that would be left to the surgeons discretion. They will need a biopsy or a portion of the tumor to determine what type of cancer it is! From that point on, you are placed in postoperative recovery unit and a month later after surgery, radiation and chemotherapy depending on what they discover from the Lab.

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They found mine and took a large bit of it out within a month. I researched my brain surgeon and he is regarded as the best. I always research the doctor talking to me and get as much info as possible. He was right the surgery went great.

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Profile picture for Maryann @mkoch

You need to find a neurosurgeon you feel listens to you and you are comfortable with. You state that your meningioma is "large lemon." You wrote it is 3 millimeters but is that a typo and it is actually 3 centimeters?
Just want to clarify before I weigh in.

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Thank you for your reply! Here is how it measures on last MRI:

"Redemonstrated extra-axial enhancing mass along the lateral right temporal lobe measuring 3.4 cm AP x 3.3 cm TR x 3.7 cm CC, most consistent with a known meningioma. There is adjacent mass effect and sulcal narrowing with a 3 mm right to left midline shift. The distal M1 segment of the right middle cerebral artery lies adjacent to the posteromedial border of this mass."

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Profile picture for jbaumgarten6 @jbaumgarten6

I agree with the last comment about finding the right brain surgeon immediately. My personal advice is someone that can map the precise location using and MRI GRAPHS of the exact location of the tumor. Whether or not the tumor is extractable or not that would be left to the surgeons discretion. They will need a biopsy or a portion of the tumor to determine what type of cancer it is! From that point on, you are placed in postoperative recovery unit and a month later after surgery, radiation and chemotherapy depending on what they discover from the Lab.

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Thank you for reply. So grateful for the support. What is a MRI GRAPHS? Is the that different than the MRI's I've had which was "Multiplanar, multisequence MRI of the brain with and without contrast". I was told they were "mapping it" for surgery. My husband said why can't you measure "volume" and my neurosurgeon said that his hospital "didn't get the funding for that technology", but other hospitals did have that. He didn't seem to think it was that big of a deal. It's all so confusing.

He says it is a "presumed" meningioma, he is not interested it a biopsy because if they are going to go in, they will just "re-sect" or "de-bulk" it, that will also serve as the biopsy.

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Profile picture for babs1121 @babs1121

Thank you for your reply! Here is how it measures on last MRI:

"Redemonstrated extra-axial enhancing mass along the lateral right temporal lobe measuring 3.4 cm AP x 3.3 cm TR x 3.7 cm CC, most consistent with a known meningioma. There is adjacent mass effect and sulcal narrowing with a 3 mm right to left midline shift. The distal M1 segment of the right middle cerebral artery lies adjacent to the posteromedial border of this mass."

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babs1121: Now that you have clarified the size as 3cm. and not 3mm. I am of the opinion that the two neurosurgeons that have suggested immediate surgery have pointed you in the right direction. A lesion that large could very well be causing the symptoms you describe by pressing on nerves in critical areas. Please don't feel like you have to accept a doctor postulating that your symptoms are due to anxiety when you have an MRI that very well may be suggesting otherwise. I would not "watch-and-wait" when the 2 other neurosurgeons have advised you to remove it as soon as possible. Their advice is most likely b/c it seems to be growing faster than typical meningiomas grow. Is there a reason you feel compelled to remain under the care of the doctor you refer to as your "current neurosurgeon?" I am thinking one of the other 2 neuro docs who recommended removal would be a better choice for you.

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