L sided facial numbness, progressing, still no diagnosis

Posted by kgrieman @kgrieman, Jul 29, 2022

Hello, I have a family member that developed left sided facial numbness 5 years ago. It has progressively gotten worse over the years. He has completed a full work up including 2nd opinion at Mayo with scans and NeuroSurg with no answer. Good news, they cannot see any concerns. No other symptoms. Just thought I would see if anyone else in similar situation, any thoughts on direction? Thanks!

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Hello @kgrieman and welcome to Mayo Clinic Connect. It is so great of you to reach out on behalf of your family member to see if you can be of help!

I wonder if your family member has had any of the following: brain injuries, dental surgery, head or neck tumors, autoimmune diseases such as Guillain-Barré syndrome, transient ischemic attacks, chemical burns, heat or fire burns, severe allergic reactions, cold exposure, severe diabetic neuropathy, or severe anemia prior to the numbness setting in?

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I have this also. The docs considered a neuroma. Had MRI and CT but cannot do contrast. I honestly don't care to do any more explorations. I have a lot of issues with sensations and have decided to just accept this one until it becomes clear I really need to find out the cause. In other words, if it stays the same I am okay, and if it gets worse the cause may become more apparent.

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@windyshores

I have this also. The docs considered a neuroma. Had MRI and CT but cannot do contrast. I honestly don't care to do any more explorations. I have a lot of issues with sensations and have decided to just accept this one until it becomes clear I really need to find out the cause. In other words, if it stays the same I am okay, and if it gets worse the cause may become more apparent.

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i AM DOING THE SAME IF IT GETS WORSE THEN I will think about some other solution NS REAL CAUSE Thank you for sharing hope we both feel better and it subsides Barb BAKER Northern MN Mayo is the best

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