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Know anyone else paralyzed from Critical Illness Polyneuropathy (CIP)?
After an alcohol-withdrawal–related ICU course that included pneumonia and prolonged ventilation, my brother developed a severe ICU-acquired neuropathy (CIP), leading to almost complete paralysis (tetraplegia). Although he continues some physical therapy, there’s no specific cure I know of, so his current care centers on supportive management. But I’d love to connect with any others who are facing similar challenges.
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Hello @scottydot, Welcome to Connect. I know this has to be difficult for you as well as your brother. While you wait for other members who may have experience, I was not familiar with ICU acquired neuropathy so did some digging and found a couple of reference articles that discuss the topic. The one from Science Direct has a lot of related articles listed and might be helpful if you haven't seen it.
-- Critical illness polyneuropathy and myopathy: a review of evidence and the implications for weaning from mechanical ventilation and rehabilitation: https://www.sciencedirect.com/topics/medicine-and-dentistry/critical-illness-polyneuropathy
-- ICU-acquired weakness: Critical illness myopathy and polyneuropathy: https://pubmed.ncbi.nlm.nih.gov/40158422/
Are you providing caregiver support for your brother?