Keytruda —> now very low TSH

Posted by abob @abob, May 15 7:32pm

So new side effects from Keytruda.
Not only has it caused AFibs, but now it has caused Hypothyroidism.

Has this happened to anyone else?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

abob | @abob | May 16 11:24am

And this more recent blood test his TSH is very high!

Lisa, Volunteer Mentor | @lls8000 | May 21 1:35pm

@abob, sorry to hear that your husband and you are facing this new challenge. I think you had enough on your plates! The good thing is that his doctors were monitoring for this side effect. How are they responding or treating the thyroid swings?

abob | @abob | May 21 3:06pm

Sorry to vent. Our “world class” Florida cancer center is good with treatment but poor with communication. Altho we’re on the RN alert list, and I’ve posted msg on his patient portal, and I’ve left a vm for rn team, no contact yet re his recent results. He’ll probably be referred to an endocrinologist. Major concern is continuing with Keytruda since it has already affected his heart and now thyroid. Thanks for listening.

Colleen Young, Connect Director | @colleenyoung | May 28 6:05pm

In reply to @abob "Sorry to vent. Our “world class” Florida cancer center is good with treatment but poor with..." + (show)

@abob, you might also be interested in this related discussion that @michele1947 started:
- Cancer and TSH levels https://connect.mayoclinic.org/discussion/cancer-and-tsh-levels/

@abob, any update?

abob | @abob | May 28 6:53pm

Thanks for reaching out. April TSH 0.005, May TSH 40.0

2weeks after results, no call from cancer center but just got call from an Endocrinologist who received referral from them. Earliest appt is mid Oct.

Awaiting call back from cancer center if 5 months is too long to wait.

(Seems to be a shortage of endocrinologists in Florida. I called all 10 within 100 miles - most not taking new patients, on,y 1 has new pt appt also in Oct.)
Sigh.