Keytruda for neuroendocrine cancer

Posted by tfoucaul @tfoucaul, May 6 3:01pm

What kind of experience/side effects have patients had with Keytruda (monotherapy) for neuroendocrine cancer?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

I haven't heard of many instances of Keytruda being used for NETS. I'll be curious to see if therebhave been any reports of it's use and the results

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@tfoucaul, what type of neuroendocrine tumor do you have? Have you had other treatments?

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PNEt. Had capTem, lanreotide, everolimus, prrt, CapeOx and now Keytruda. Been going strong for 6.5 yrs now with stage 4 unresectable from beginning.

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My friend did Keytrude for kidney cancer and it shut down his adrenal glands completely. He had to go off Keytruda and start medication to start his adrenal glands again.

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Profile picture for ntrlred @ntrlred

My friend did Keytrude for kidney cancer and it shut down his adrenal glands completely. He had to go off Keytruda and start medication to start his adrenal glands again.

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Well...I've been on keytruda for 2 months now. No side effects yet.

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