After Keytruda, what's next?

Posted by liz8716 @liz8716, Aug 28, 2019

@merpreb ...Hi, my name is Elizabeth. 31 yrs old.I was diagnosed with stage IV nsclc in April. I saw your story on here and it has given me hope. I'm currently on keytruda. Unfortunately my oncologist at this time says there is no cure and that keytruda can only be administered for 2 years. That she is only helping me live longer at this point because there is no cure. I did have taxol and carboplatin (4 rounds). My tumors have shrunk. But when I ask the dr "what next after 2 years of keytruda she says we'll wait and see. It's sort frustrating. I have to ask. What was your treatment?? Because the 5 year mark almost sounds impossible from what my dr states. Or if anyone else here knows of any new treatments.

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@colleenyoung

Hi everyone,
I would like to share a message that I received from a family member of @shortshot80 (Nancy).
"She recently stopped radiation treatments. The five hour round trip is just too much for her to get to and from radiation. She is in hospice. This group has been so good for her and she appreciates so much all the support. Could you please let everyone know in her group what she has decided? Thank you!!" D.

Jump to this post

@colleenyoung- Has there been any other word about Nancy?

REPLY
@colleenyoung

Hi everyone,
I would like to share a message that I received from a family member of @shortshot80 (Nancy).
"She recently stopped radiation treatments. The five hour round trip is just too much for her to get to and from radiation. She is in hospice. This group has been so good for her and she appreciates so much all the support. Could you please let everyone know in her group what she has decided? Thank you!!" D.

Jump to this post

I just saw this, glad Nancy is getting the care she deserves. Please share with her family what her sharing meant to me and the group. Never met personally, but appreciate the joy of life and courage to share Nancy has demonstrated. Wish for a safe, gentle passage....

REPLY
@colleenyoung

Hi everyone,
I would like to share a message that I received from a family member of @shortshot80 (Nancy).
"She recently stopped radiation treatments. The five hour round trip is just too much for her to get to and from radiation. She is in hospice. This group has been so good for her and she appreciates so much all the support. Could you please let everyone know in her group what she has decided? Thank you!!" D.

Jump to this post

How thoughtful to let us know how Nancy is doing. She shared so much of her life and I am glad that Hospice will help her over the last wave.

REPLY
@colleenyoung

Hi everyone,
I would like to share a message that I received from a family member of @shortshot80 (Nancy).
"She recently stopped radiation treatments. The five hour round trip is just too much for her to get to and from radiation. She is in hospice. This group has been so good for her and she appreciates so much all the support. Could you please let everyone know in her group what she has decided? Thank you!!" D.

Jump to this post

Thank you for sharing that sweet note, @colleenyoung. I've been thinking about her a lot lately and I hope she has pain relief and a gentle homegoing. She is a dear, dear person and I'm grateful to Connect for the opportunity to meet her.

REPLY

Hi everyone,
I would like to share a message that I received from a family member of @shortshot80 (Nancy).
"She recently stopped radiation treatments. The five hour round trip is just too much for her to get to and from radiation. She is in hospice. This group has been so good for her and she appreciates so much all the support. Could you please let everyone know in her group what she has decided? Thank you!!" D.

REPLY
@hopeful33250

@shortshot80 Hello Nancy,
I hope you have been able to get some pain relief from Hospice by now. Praying for you!

Jump to this post

I'm thinking of you too Nancy. I hope that you are resting peacefully and pain-free.

REPLY
@shortshot80

SHORTSHOT NANCY.... NO I HAVE NOT TAKEN THAT. I AM NOT ON HOSPICE YET, HAVE TO WAIT A COUPLE WEEKS.NANCY

Jump to this post

@shortshot80 Hello Nancy,
I hope you have been able to get some pain relief from Hospice by now. Praying for you!

REPLY

Thank you for sharing so much of your being and life. I to Invision you on your dory and hope a gentle, pain free trip to your next adventure, hugs!

REPLY

Dear Nancy @shortshot80
We will miss your lovely posts! I will pray that this journey you are taking will be comfortable and that you will be surrounded by your family and good friends. Please know that those of us on Connect have loved and appreciated your courage and statements of faith and hope! Thank you for being part of our circle of friends. Your cyber friend, Teresa

REPLY
@shortshot80

COLLEEN/ SHORTSHORT//I DON'T KNOW IF I WILL BE ABLE TO GET ON HERE ANY MORE OR NOT. I'M BAD WITH CANCER GROTHS COMING OUT ALL OVER MY BODY. THREE IN MY STOMACH, ONE IN MY RIGHT UNDER ARM, AND ONE ON THE RIGHT SIDE OF MY NECK RIGHT IN PUBLIC VIEW. THE ONE ON MY NECK HAS CAUSED ME TO HAVE A SORE THROAT AND ALSO INSIDE MY NOSE. I HAVE LOST POUNDS IN THE LAST WEEK AND DON'T FEEL GOOD. i CAN'T EVEN TALK ANY MORE JUST WHISPER. . SO IF YOU DON'T HEAR FROM ME YOU WILL KNOW WHAT HAS HAPPENED.. HAVE HOPED TO MAKE IT TO THE END OF AUGUST, BUT DON'T THINK SO. LOVE YOU ALL AND THANKS FOR ALL THE GREAT INFORMATIOON PASSED OUT IN THE LAST FOUR YEARS. NAND/SHORTSHOT.

Jump to this post

Dear Nancy @shortshot80, thank you for finding the energy to write to your virtual friends at Mayo Clinic Connect. I'm also tagging Teresa @hopeful33250 so she sees your message.

I love @merpreb's image of you gently swaying on the waves in your Dory. I hope that you can capture that image and be comforted by it. May you be pain free and at peace my friend. Sending you a gentle embrace. Your cyber friend, Colleen

REPLY
Please sign in or register to post a reply.