1. < Polymyalgia Rheumatica (PMR)

Keep encouraged, tapering second time is working

Posted by joycj @joycj, 2 days ago

My husband (now 80) diagnosed with PMR 2020; went on prednisone; tapered down, but in 2023 it came back. Dr. retired. We found a new Dr in June 2024 who is very slowly tapering down (started at only 10 and decreases 1 mg per month) and doing blood work to check inflamation. We are down to 2 mg with only the slightest arm "pain". We will be decreasing to 1 mg very soon. He is also taking extra-virgin olive oil (they say for inflamation- trying it).
We read these support group conversations with all of you in prayer along with my husband. Please Keep Encouraged.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | 2 days ago

Great to hear your husband is doing better @joycj. It really helps to have a special encourager on your PMR team. I thought you might be interested in another discussion started by @dadcue that has some really good reference links.

-- How to Slowly and Safely Taper Off Prednisone but ... no set rules.
https://connect.mayoclinic.org/discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules/

REPLY
aisp3b | @aisp3b | 2 days ago

I have always used extra vergin organic olive oil from Italy. Unfortunately I have PMR. However, I started at 16mg Methylprednisolone for 30 days and then 1.5 weeks ago went down to 12mg. So far I am doing well with no PMR symptoms at all. Maybe my olive oil is helping.

REPLY
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