Just diagnosed with tortuous colon

Posted by marmoldav @marmoldav, May 14 7:41pm

Hello. I just had my first colonoscopy and the report on it says I have a tortuous colon. For some time now I have complained to my doctor that I get full after eating very little. I had loads of test done that tested my stomach and at what speed it emptied. They said everything was fine. I still have the problem and, to be honest, it's worse since the colonoscopy. I have had no contact from the doctor since the colonoscopy about the results (tortuous colon and a tubular adenoma) which I find strange and if I don't here soon I'm going to ask my primary care doctor what to do. I'm wondering if the tortuous colon is the cause for the full feeling and how it will effect future colonoscopies because with the tubular adenoma I think I'm gonna need colonoscopy more than every 10 years. If anyone has a similar experience I'd like to hear about it.

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I have IBS-C and a severely redundant colon. Before I got on top of it, I had lost 25 lb and was technically underweight. This is what I learned works for me, through trial and error:

NOS: No grains (including no gluten) and no lactose. No legumes. Trace animal/milk fat. No beef or poultry. No fruit. No to most low and all high FODMAP foods as rated by the Monash University app. No coffee, caffeine, carbonation, most herbal teas. No to most vegetables. No sugar or most liquid natural sweeteners. No artificial sweetener. No hot pepper spice. No to large meals. No to bulking fiber supplements. No emotional stress (good emotions and bad emotions – however I am starting to see a GI psych to engage in a seven-week hypnosis program to cut the connection between my emotions and gut – they call it creating muscle memory. Recommended by my gastro doc.)

YESES: Green plantain flour, fresh green and hard plantains, pea protein isolate, potato starch, egg whites, low fat fish (tilapia, cod, shrimp, Lactaid nonfat milk, 1-2 heaping teaspoons of Lactaid cottage cheese/day. Brewers Yeast, Yeast, Chia (in moderation and well soaked), Swiss chard (no stems), tender kale (no stems), collard greens, common radish, the green part only of green onions, patty pan squash, mung bean sprouts, kobocha squash (Asian grocery), parsnip, fresh and dried herbs, olive oil (not a lot), Peppermint tea, lattes with my ingredients (I make a turmeric one), Rhubarb. Pure stevia. 1-3 raw brazil nuts. Walnuts for baking. A bit of maple syrup. Korean 100% sweet potato noodles. Maille dijon mustard, trace Mayo, A couple of olives, a few capers. Fody brand condiments, in small quanities. 0.5 teaspoon Bragg's apple cider vinegar with every meal (to give me more acid to digest my food — a key change for me). 4-6 small meals a day. Always a warm drink or tap water to sip. My system doesn't work well without that. Mineral oil as a laxative, at bedtime, 3/8 – 1/2 teaspoon. Note: my gut is hypersensitive, so both the oil and vinegar are only needed in small quantities. Adequate sleep – lack of such disregulates my colonic processes.

End notes: I don't get constipated (incomplete evacuation) much due to the vinegar. Emotional distress (from politics for me) really sent my IBS-C into overdrive and triggered my need for a very limited diet. For brief times I was on a small dose of an anti-anxiety med that had a side effect of helping IBS-C. Then I stopped, and for some reason, some months later, I was depressive and then again on a small dose of an anti-depressant and then stopped. I have used relaxation apps and the IBS-C, doctor recommended Mahana app (the free, initial series of information) and still do its square breathing. I do stomach massage as laid out by the National Health Service of England.

IBS-C is functional. I think a redundant colon contributes to its manifestation. I can elaborate on the above if you want, in any way.

Keep trying until you find what works for you. A GI/IBS dietitian may help or the GI psych route I am now taking.


I really truly think the squatty potty (Squatty Potty Simple Bathroom Toilet Stool, White, 7" https://a.co/d/gCayJas) helps so much. The normal persons colon needs help getting in to the right position so people with extra colon really need help getting it in the right position and this is the thing to do it. If you're out and about, at restaurant or someone's house, look for something about the same height to use, a bathroom waste can usually works. You're already doing anything else I can think of suggesting.

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I agree. I used to think they were just a scam. But now I love it. It makes so much sense.

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