Just diagnosed with pancreatic NET stage 1

Posted by kt348 @kt348, Oct 17, 2022

I’m a 64 year old woman, I’ve have colon issues for decades among other issues. They found my tumor on a CT scan, I don’t think I have any symptoms because of all my other issues in play. Anyway, I’m devastated! It’s on the tail portion of my pancreas, 1c in size, well sectioned, slow growing. I had biopsy done with scope to confirm cancer. My oncologist surgeon had 2 options, wait 6 months and repeat CT so we had a baseline and check for any changes or surgery to remove it, which the tail of pancreas is removed and also remove spleen, tube running (for temp drainage) out of my nose. 4 immunization shots followed by 2 more. So I opted for waiting the 6 months. I’m so confused and scared it’s going to move to another area. If anyone has had this same issue please message me back with your decision. It’s been a month since I found out and I’m a wreck! Thanks

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

meleelee1 | @meleelee1 | May 27, 2023

I understand how you feel. My net is also on the tail. Mine net is smaller at 6mm. They have been watching mine for a year now. I am tired of waiting. I have a cough, pain, bloating, chills, flushing. . . I have no one that wants to talk about it. I think being bewildered is part of it.

Teresa, Volunteer Mentor | @hopeful33250 | May 26, 2023

In reply to @keisham808 "Thank you so much! 🥰" + (show)

Keep posting as you have questions or concerns, @keisham808. Wishing you the best possible outcome when you have your biopsy in June.

pavlina60 | @pavlina60 | May 25, 2023

In reply to @michellesimpson10 "Thank you 💜💜. I just came from the doctor and he removed the abdominal drain. That..." + (show)

Small steps - one at at a time!

michellesimpson10 | @michellesimpson10 | May 25, 2023

In reply to @pavlina60 "It will get better, Michelle! Keep the faith and eat - small frequent meals!" + (show)

Thank you 💜💜. I just came from the doctor and he removed the abdominal drain. That has helped with pain relief

pavlina60 | @pavlina60 | May 25, 2023

In reply to @michellesimpson10 "How are you doing now? I had my surgery to remove the tail of my pancreas..." + (show)

It will get better, Michelle! Keep the faith and eat - small frequent meals!

michellesimpson10 | @michellesimpson10 | May 25, 2023

How are you doing now? I had my surgery to remove the tail of my pancreas , the PNET and my spleen in May 8 and was discharged May 14. I’m 11 days out of the hospital. I feel pretty good. Lots of pain and not eating much but I’m able to keep down what I do eat. I’m hoping to get my abdominal drain out today and I’m sure that will help me lessen the pain and be more comfortable. All of us who are going through this are fighters and are in my prayers. Have an amazing day 💜💜