Just diagnosed with stage 4 kidney cancer: What treatments help?

We had our first meeting Thursday. He did say that he had a collage in the lower 48 that was an expert in Kidney cancer and was going to use him as a consultant if I was ok with that.

My wife and I really lie him and the team that he has set up to work with me.

I met him Thursday and he scheduled a brain CT scan for the next day. I was surprised that he could get it scheduled so fast. The hospital called me Friday morning and said it would be a week, and my wife called the doctor, and they said that was ridicules and called the hospital, an hour later I was at the hospital getting my CT scan!

He doesn't want to start treatment until he gets the results of the brain scan, he said that would help him decide what treat he would need to go with.

I am hoping that it hasn't spread to the brain already.

Hi again Ron. If your doctor has a connection to Cleveland Clinic he/she will have access to and be willing to work with their experts in kidney cancer for consultation. I had my surgery at the Cleveland Clinic and also consulted with an oncologist there who specializes in kidney cancer.

Did you have your appointment this week?

They are concerned now that it may have spread to my brain. I had a CT scan this morning and wait to get the results back.

Depending how it looks may have to have an MRI on my brain. was trying to stay away from the MRI, I am very Closter phobic and would have to put meout for it.

Get a second opinion in terms of treatment and next steps, always good to have another point of view.

This too shall pass.

https://www.facebook.com/groups/1230616101136980/

This is my second message to you, Ron. I'm the old guy whose kidney cancer, and lung cancer, was found incidentally. I failed to mention that I also have Chronic Kidney Failure (for about 10 years). I echo the comments of Ginger. I'm being followed, and treated, by a couple of super Oncologists at The James, at Ohio State University. If you are close to a good teaching organization, such as the Fred Hutchinson Center in Seattle or the clinics Ginger mentioned, I would encourage you to seek them out. There are a number of very good not for profit cancer centers. If you caan, do a bit of research, as you need to advocate for yourself. Please remember, that there are a lot of us put here pulling for you. Hang in there. This Navy Vet wishes you well.

This is my second message to you, Ron. I'm the old guy whose kidney cancer, and lung cancer, was found incidentally. I failed to mention that I also have Chronic Kidney Failure (for about 10 years). I echo the comments of Ginger. I'm being followed, and treated, by a couple of super Oncologists at The James, at Ohio State University. If you are close to a good teaching organization, or the clinics inger mentioned, I would encourage you to seek them out. There are a number of very good not for profit cancer centers. If you caan, do a bit of research, as you need to advocate for yourself. Please remember, that there are a lot of us put here pulling for you. Hang in there!

where do I find the "Our Journey with Stage IV Kidney Cancer"

Have an appointment with the Cancer center this week to find out what we are going to do.

My doctor has recommended immunotherapy and then removal of the mass.

I live in Alaska so not close to any medical facilities. My doctor did graduate or attend the Cleveland clinic though. I am a disabled vet, so my medical is covered by the VA

Having lots of trouble sleeping now, only 3 to 4 hours a night.

would like to know what to expect with the immunotherapy, side effects, how well did it work? Where you able to work?