Just diagnosed with atypical complex hyperplasia after uterine biopsy

Posted by amt1105 @amt1105, Nov 14, 2023

I’m 53 and have not gone through menopause. I went to my yearly gyno visit, and I got a bad Pap test back. Gyno did a cervical biopsy which was negative and and endometrial biopsy which came back with the atypical complex hyperplasia. I had a transvaginal scan done, uterus is 5.7mm, myometrium was normal, no masses were found, only 3 fibroids which I knew were there. Normal pap last year and normal TVUS back in March of this year. I have been reading so much online and it’s so confusing. Is this cancer? I go to my specialist tomorrow to hopefully find out next steps which I hope is a complete hysterectomy. I had a partial done five years ago. I’m just looking for some help I haven’t been able to sleep or eat in weeks.

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@amt1105 That’s a lot of information to take in. I hope your doctor also explained it all to you. You must be very relieved that there is no evidence for uterine invasion or disease external to the uterus. With laparoscopic surgery will you be in and out of the hospital in the same day? It’s really amazing to me that major surgery like a hysterectomy (it’s major surgery to me, anyway) can be done in same day surgery. I am sending you warm thoughts and hugs as you go into the surgery and good news after the surgery is done.

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@naturegirl5

@amt1105 That’s a lot of information to take in. I hope your doctor also explained it all to you. You must be very relieved that there is no evidence for uterine invasion or disease external to the uterus. With laparoscopic surgery will you be in and out of the hospital in the same day? It’s really amazing to me that major surgery like a hysterectomy (it’s major surgery to me, anyway) can be done in same day surgery. I am sending you warm thoughts and hugs as you go into the surgery and good news after the surgery is done.

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Yes a lot of information to take in I’m hoping the Dr explains things even more today. Yes it’s supposed to be same day but we will see how it goes. I would like to go home afterwards but depending on my pain level afterwards. Thank you again for all your support and kind words. Thank you for your prayers.

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@amt1105

Yes a lot of information to take in I’m hoping the Dr explains things even more today. Yes it’s supposed to be same day but we will see how it goes. I would like to go home afterwards but depending on my pain level afterwards. Thank you again for all your support and kind words. Thank you for your prayers.

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@amt1105 When I had my hysterectomy in 2019 the nurse who prepped me was so very helpful. While she couldn’t explain all the information about my diagnosis (endometrioid adenocarcinoma) she was very experienced with hysterectomies including how to know when I could drive my car again. I’m hoping that your medical team is caring and informative and that your doctor answers all your questions.

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Thank you so very much, I hope so too. That’s all I have been doing is searching on the internet which can bring you down many rabbit holes. Thank you for your kind words. 🙏

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@naturegirl5

@amt1105 I’m wondering what you found out from the specialist that you saw on November 15. Did you leave the appointment with a plan?

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Helen, I had my follow up today after my surgery and I’m in complete shock. Stage 1 endometrial cancer however they found a 3mm tumor in my ovary as well. I’m beyond devastated. I almost passed out in the Dr’s office. They did biopsy the lymph nodes they came back negative they also did a cavity wash which came back negative. Oncologist believes that these are two serrated incidences. I’m so distraught not sure what to think. Oncologist is working with pathology to see if both are related, if they are then I have to have chemo, if not then no chemo necessary. Have you ever heard of this before? I’m so so scared. Thank you

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@amt1105

Helen, I had my follow up today after my surgery and I’m in complete shock. Stage 1 endometrial cancer however they found a 3mm tumor in my ovary as well. I’m beyond devastated. I almost passed out in the Dr’s office. They did biopsy the lymph nodes they came back negative they also did a cavity wash which came back negative. Oncologist believes that these are two serrated incidences. I’m so distraught not sure what to think. Oncologist is working with pathology to see if both are related, if they are then I have to have chemo, if not then no chemo necessary. Have you ever heard of this before? I’m so so scared. Thank you

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HI am1105,

I'm so sorry to hear your news. It must be really frightening. I wish I knew more about it...I send this with prayers and lots of sympathy. I wanted you to see something here in case Helen couldn't reply.

I don't mean to share "toxic positivity" here, so ignore this part if you aren't ready to hear it. One good thing is that you are getting medical care right now. You have a team in place. You are getting informed. They are following the procedures and doing the tests. Maybe try repeating a phrase to calm your nerves and fears? Something like "They know what they are doing. They do it all the time." or "I am getting the best care possible."?

I hope this helps a little. Sending hugs.

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Thank you Helen ❤️🥰 trying to stay positive

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@amt1105

Helen, I had my follow up today after my surgery and I’m in complete shock. Stage 1 endometrial cancer however they found a 3mm tumor in my ovary as well. I’m beyond devastated. I almost passed out in the Dr’s office. They did biopsy the lymph nodes they came back negative they also did a cavity wash which came back negative. Oncologist believes that these are two serrated incidences. I’m so distraught not sure what to think. Oncologist is working with pathology to see if both are related, if they are then I have to have chemo, if not then no chemo necessary. Have you ever heard of this before? I’m so so scared. Thank you

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@amt1105 I haven't heard specifically of what you are sharing about the tumor in the ovary and endometrial cancer. At least not in our Support Group. We're a self-selected group who comes here and I hope others in group will come here and provide more information about their experiences.

I've been in your place and heard medical results (endometrial cancer) that I wasn't prepared for or expected. It's so frightening and devastating. I'm going to share the advice I give myself. What you're going through is huge and trying to minimize it or trying to block it from your mind isn't helpful. It might sound trite, but allow yourself your feelings. If there are others (your spouse, your children, your close friends) who will sit with you and listen, then allow yourself to share your feelings, especially your fears. If you are having difficulty sleeping (I did) then get up, walk around, and if possible, go outside and look at the night sky. If it's too cold where you are you can look out your windows. I find nature calming and perhaps you do too. The emotional place you are right now is even more scary because you don't have all the information yet. So, you wait for the pathologists to do their work. Waiting is really difficult.

It's very encouraging that lymph nodes were negative as was the pelvic wash. The tumor in the ovary may be benign and unrelated to the endometrial cancer. Hope. That's what I keep coming back to. This doesn't mean "I'll think positive. I'll be optimistic". There is something deeply spiritual, to me, about Hope. You are doing everything right by getting medical care, working with your doctors, and following up. You are turning toward Hope by allowing the professionals to do what they do best.

When is your next appointment with your oncologist?

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@naturegirl5

@amt1105 I haven't heard specifically of what you are sharing about the tumor in the ovary and endometrial cancer. At least not in our Support Group. We're a self-selected group who comes here and I hope others in group will come here and provide more information about their experiences.

I've been in your place and heard medical results (endometrial cancer) that I wasn't prepared for or expected. It's so frightening and devastating. I'm going to share the advice I give myself. What you're going through is huge and trying to minimize it or trying to block it from your mind isn't helpful. It might sound trite, but allow yourself your feelings. If there are others (your spouse, your children, your close friends) who will sit with you and listen, then allow yourself to share your feelings, especially your fears. If you are having difficulty sleeping (I did) then get up, walk around, and if possible, go outside and look at the night sky. If it's too cold where you are you can look out your windows. I find nature calming and perhaps you do too. The emotional place you are right now is even more scary because you don't have all the information yet. So, you wait for the pathologists to do their work. Waiting is really difficult.

It's very encouraging that lymph nodes were negative as was the pelvic wash. The tumor in the ovary may be benign and unrelated to the endometrial cancer. Hope. That's what I keep coming back to. This doesn't mean "I'll think positive. I'll be optimistic". There is something deeply spiritual, to me, about Hope. You are doing everything right by getting medical care, working with your doctors, and following up. You are turning toward Hope by allowing the professionals to do what they do best.

When is your next appointment with your oncologist?

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Thank you so much for your kind words. Last night I didn’t sleep at all it’s been so very difficult. My husband and my daughter have been my rock through all of this. I’m thought the same since they didn’t find any cancer in my lymph nodes or with the pelvic wash, maybe it’s early stage. I don’t know what to think. It’s been such a roller coaster ride. They are did gene bloodwork for the BRCA gene. We will see what comes of that. I cannot thank you enough for your kind words and support. It truly does help to talk with others who have been through this.

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@naturegirl5

@amt1105 I haven't heard specifically of what you are sharing about the tumor in the ovary and endometrial cancer. At least not in our Support Group. We're a self-selected group who comes here and I hope others in group will come here and provide more information about their experiences.

I've been in your place and heard medical results (endometrial cancer) that I wasn't prepared for or expected. It's so frightening and devastating. I'm going to share the advice I give myself. What you're going through is huge and trying to minimize it or trying to block it from your mind isn't helpful. It might sound trite, but allow yourself your feelings. If there are others (your spouse, your children, your close friends) who will sit with you and listen, then allow yourself to share your feelings, especially your fears. If you are having difficulty sleeping (I did) then get up, walk around, and if possible, go outside and look at the night sky. If it's too cold where you are you can look out your windows. I find nature calming and perhaps you do too. The emotional place you are right now is even more scary because you don't have all the information yet. So, you wait for the pathologists to do their work. Waiting is really difficult.

It's very encouraging that lymph nodes were negative as was the pelvic wash. The tumor in the ovary may be benign and unrelated to the endometrial cancer. Hope. That's what I keep coming back to. This doesn't mean "I'll think positive. I'll be optimistic". There is something deeply spiritual, to me, about Hope. You are doing everything right by getting medical care, working with your doctors, and following up. You are turning toward Hope by allowing the professionals to do what they do best.

When is your next appointment with your oncologist?

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My next appt is on the 21st however he did say he would call me as soon as he knew more about the pathology report.

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