Just diagnosed with atypical complex hyperplasia after uterine biopsy

Posted by amt1105 @amt1105, Nov 14, 2023

I’m 53 and have not gone through menopause. I went to my yearly gyno visit, and I got a bad Pap test back. Gyno did a cervical biopsy which was negative and and endometrial biopsy which came back with the atypical complex hyperplasia. I had a transvaginal scan done, uterus is 5.7mm, myometrium was normal, no masses were found, only 3 fibroids which I knew were there. Normal pap last year and normal TVUS back in March of this year. I have been reading so much online and it’s so confusing. Is this cancer? I go to my specialist tomorrow to hopefully find out next steps which I hope is a complete hysterectomy. I had a partial done five years ago. I’m just looking for some help I haven’t been able to sleep or eat in weeks.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Thank you Helen ❤️🥰 trying to stay positive

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@amt1105

Helen, I had my follow up today after my surgery and I’m in complete shock. Stage 1 endometrial cancer however they found a 3mm tumor in my ovary as well. I’m beyond devastated. I almost passed out in the Dr’s office. They did biopsy the lymph nodes they came back negative they also did a cavity wash which came back negative. Oncologist believes that these are two serrated incidences. I’m so distraught not sure what to think. Oncologist is working with pathology to see if both are related, if they are then I have to have chemo, if not then no chemo necessary. Have you ever heard of this before? I’m so so scared. Thank you

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HI am1105,

I'm so sorry to hear your news. It must be really frightening. I wish I knew more about it...I send this with prayers and lots of sympathy. I wanted you to see something here in case Helen couldn't reply.

I don't mean to share "toxic positivity" here, so ignore this part if you aren't ready to hear it. One good thing is that you are getting medical care right now. You have a team in place. You are getting informed. They are following the procedures and doing the tests. Maybe try repeating a phrase to calm your nerves and fears? Something like "They know what they are doing. They do it all the time." or "I am getting the best care possible."?

I hope this helps a little. Sending hugs.

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@naturegirl5

@amt1105 I’m wondering what you found out from the specialist that you saw on November 15. Did you leave the appointment with a plan?

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Helen, I had my follow up today after my surgery and I’m in complete shock. Stage 1 endometrial cancer however they found a 3mm tumor in my ovary as well. I’m beyond devastated. I almost passed out in the Dr’s office. They did biopsy the lymph nodes they came back negative they also did a cavity wash which came back negative. Oncologist believes that these are two serrated incidences. I’m so distraught not sure what to think. Oncologist is working with pathology to see if both are related, if they are then I have to have chemo, if not then no chemo necessary. Have you ever heard of this before? I’m so so scared. Thank you

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Thank you so very much, I hope so too. That’s all I have been doing is searching on the internet which can bring you down many rabbit holes. Thank you for your kind words. 🙏

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@amt1105

Yes a lot of information to take in I’m hoping the Dr explains things even more today. Yes it’s supposed to be same day but we will see how it goes. I would like to go home afterwards but depending on my pain level afterwards. Thank you again for all your support and kind words. Thank you for your prayers.

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@amt1105 When I had my hysterectomy in 2019 the nurse who prepped me was so very helpful. While she couldn’t explain all the information about my diagnosis (endometrioid adenocarcinoma) she was very experienced with hysterectomies including how to know when I could drive my car again. I’m hoping that your medical team is caring and informative and that your doctor answers all your questions.

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@naturegirl5

@amt1105 That’s a lot of information to take in. I hope your doctor also explained it all to you. You must be very relieved that there is no evidence for uterine invasion or disease external to the uterus. With laparoscopic surgery will you be in and out of the hospital in the same day? It’s really amazing to me that major surgery like a hysterectomy (it’s major surgery to me, anyway) can be done in same day surgery. I am sending you warm thoughts and hugs as you go into the surgery and good news after the surgery is done.

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Yes a lot of information to take in I’m hoping the Dr explains things even more today. Yes it’s supposed to be same day but we will see how it goes. I would like to go home afterwards but depending on my pain level afterwards. Thank you again for all your support and kind words. Thank you for your prayers.

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@amt1105 That’s a lot of information to take in. I hope your doctor also explained it all to you. You must be very relieved that there is no evidence for uterine invasion or disease external to the uterus. With laparoscopic surgery will you be in and out of the hospital in the same day? It’s really amazing to me that major surgery like a hysterectomy (it’s major surgery to me, anyway) can be done in same day surgery. I am sending you warm thoughts and hugs as you go into the surgery and good news after the surgery is done.

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@naturegirl5

@amt1105 I’m wondering what you found out from the specialist that you saw on November 15. Did you leave the appointment with a plan?

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Yes surgery tomorrow for complete hysterectomy, what’s left from my partial hysterectomy from 5 years ago. My surgeon will be doing laproscopic surgery. MRI results showed I have adenomyosis, 1 small polyp. Endometrium normal, no thickening 2mm, no evidence of myometrial invasion or extra uterine invasion. No adnexal masses found. No evidence of extra uterine disease. As you can imagine, I was crazy looking all of this up and what it exactly means. I’m eager to have this surgery done. Thank you so very much for your kind words, thoughts and prayers.

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@amt1105

Thank you Helen, yes I wrote down a bunch of questions to ask. I’m on m way to the appt now with my husband who has been a huge support to me through this whole process. I couldn’t do it without him. I do pray and try to calm myself down. Thoughts and emotions tend to take over tough and I can’t seem to shut it down. At night it is the worse. I too live in a densely wooden area on a lake in Northern NJ. I try to get out in nature but this has been so consuming I can’t seem to break the cycle. I thank you so very much for taking time out of your day to talk with me, for me talking helps. ❤️

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@amt1105 I’m wondering what you found out from the specialist that you saw on November 15. Did you leave the appointment with a plan?

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@amt1105

Thank you Helen, yes I wrote down a bunch of questions to ask. I’m on m way to the appt now with my husband who has been a huge support to me through this whole process. I couldn’t do it without him. I do pray and try to calm myself down. Thoughts and emotions tend to take over tough and I can’t seem to shut it down. At night it is the worse. I too live in a densely wooden area on a lake in Northern NJ. I try to get out in nature but this has been so consuming I can’t seem to break the cycle. I thank you so very much for taking time out of your day to talk with me, for me talking helps. ❤️

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Hi amt1105,
Good luck at your appointment.
Since you mentioned that you pray, I'll venture to offer this:
Put your trust in the Lord for He is good. His mercy endures forever.
Thy will be done. (This little prayer got me through an entire hospitalization.)
Hugs to you and your wonderful husband!

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