Just Diagnosed with Tonsil Cancer - How to Treat?

Posted by johnbonani @johnbonani, Mar 15 2:53pm

I've just been diagnosed with stage three tonsil cancer on Feb 22nd. 63 year old male. Have seen the surgical oncologist and the radiology oncologist, both present the pro's and con's of each, both treatments sound terrible. Both recommend there own procedure and essentially leave it up to me the patient to decide. I'm wondering if some of you in this discussion have had surgery then radiation or just radiation/chemotherapy with no surgery or combination? Full dose of radiation sounds awful but then so does the surgery and I'm told they'll have to do radiation after but perhps a lower dose. Any feedback would be so very much appreciated.
🙂 - John B

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@johnbonani I have to say I'm very careful about giving advice but would be glad to share my story.
Diagnosed with p16 positive SCC January 8 via biopsy. Had found a lump under my left jaw one morning drinking coffee. January 31 underwent surgery. Small tumor in left tonsil but had both tonsils removed. Had some nodes on left side removed as well. Was considered stage 1. Pathology came out post op and was very good and doctors were happy. I'm 45 so they said they just want to watch me. No chemo or radiation at this time. So like you, I've been worried if I'm doing the right thing. In the end, I trust my doctors, my family, and the good Lord. My doctors have done this many, many times. Considering my concern, I've switched my focus to surveillance and been active in my care. Monday I do a blood draw for Navdx. April 12 first ENT visit. A few months later PETCT. And so on......but I completely understand. These decisions are tough.

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FYI Diagnosis is right tonsil Squamous Cell Carcinoma HPV Associated p63 and p16 (not fully aware of that meanig but reading it from the biopsy.) Apparently it has also spread to both Lymph nodes

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