Just diagnosed with metastatic breast cancer to the bone marrow.

Thank you. I’m really anxious. I do appreciate you checking in with me. Stay on a healthy path.

Hello @rigal I am happy that @colleenyoung tagged me for you. I know that you don’t have a plan of action yet, and that really scary information showed up in your portal.
I only have two advice to get through the day. First is remember to breathe. The second is to have a second person with you if possible at your appointment today. Ask for the doctor to write things down or give you a copy of everything so you can re-digest it after. There might be a lot of information coming at you at once.
I will be thinking of you today, and believing they will give you a plan of action, because it is easier to deal with this disease when we are doing something.
Will you come back and answer this post, so that I will get a notification after your appointment? Let me know how you are doing after?💕

Hi Chris:
thank you for getting back to me. I just finished up my labs and my office visit. My doctor set me at ease, at least for the moment. My labs all looked good and each were going in the right direction. As far as that very nerve-wracking scan report, she seemed less worried than I was about the mention of the diffusion of mets in the bone marrow. She asked if I make soup using bones which I do. And then said, where we see bone mets of course we will see it in bone marrow. Made perfect sense and she was not surprised. What the bottom line is the orserdu med is a med that needs time to work and taking scans just 6 weeks after starting was too soon. We are doing scans again in two months. So time to breath, at least for now.. I'm finally hungry. 🙂
thank you, Deb

I was just kind of wondering how you were doing, are you tolerating the meds ok?

I went on orserdu in November and seem to be tolerating it. Side effects: my hair is really thinning, acne or rash on face but very grateful so far. Next scans in May. Thank you so much for asking.

This is not Medical advice, its Informative.
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Hi Deb,
Some advice I have gotten is to compliment your prescriptions with very healthy diet, low chemicals , processed foods and strive for zero sugar daily. Oxygenate your body and look into Castro oil to use topically. **Exercise is something I am striving more for because of many studies about it's affect on cancer; this is an exerpt for Natl. Institute of Health:
Results: The mechanisms by which exercise may reduce cancer risk and/or progression may include the metabolic profile of hormones, systemic inflammation reduction, insulin sensitivity increase, antioxidant capacity augmentation, the boost to the immune system, and the direct effect on the tumor.
I'm still trying to figure out what to focus on to keep the MBC at bay...hopefully what shrinks a tumor...I have had horribly stressful events when & since BC was first diagnosed 12 yrs ago, 4th occurrence 12/23 metastatic to bone on one vertabrae, not in marrow.
Can I ask you to explain what exactly your doctor meant by mentioning making bone marrow rich soups? Is it positive for MBC--the verbal exchange you mention confuses me. I actually have avoided Bone marrow soups since metastatic for no concrete reason ....Please inform me about your sources and understanding of such soups... Hope you are feeling well right now.