Good question to discuss with your doc. I'm 70 and asked if I should continue aspirin at my check up in November. Doc said yes, research shows that it's very effective at preventing clots. She did say that I should only occasionally take Motrin and other analgesics with blood-thinning effects. So Tylenol is now my go-to for the weekly headaches and that vague flu-y feeling ET patients sometimes get in the afternoon/evening. I like Motrin better for arthritis/joint pain, but still try Tylenol first.
On another forum, I saw postings from individuals taking HU for ET, who have seen high RDW values in their blood work.
When they asked their doctors about it, they were told it that may be a side effect of HU, and not a cause for concern -- but maybe an indication that taking a multivitamin could be helpful.
Of course, only your own doctor can evaluate what the higher RDW count may mean for you.
I hope you won't have to wait a couple more months before having your question answered. It's impossible not to worry when we get "off" numbers.
On another forum, I saw postings from individuals taking HU for ET, who have seen high RDW values in their blood work.
When they asked their doctors about it, they were told it that may be a side effect of HU, and not a cause for concern -- but maybe an indication that taking a multivitamin could be helpful.
Of course, only your own doctor can evaluate what the higher RDW count may mean for you.
I hope you won't have to wait a couple more months before having your question answered. It's impossible not to worry when we get "off" numbers.
Good morning, I was diagnosed Nov 2022 with ET. Taking 1000 mg
Hydroxuria daily. Feel great, used to be tired in the afternoon, not so
much anymore. My platelets are stable in the 350 to 390 range.
Female, 69 years old.
Had total Hysterectomy 6 weeks ago. I looked up my pre op
blood work, noticed that my Rdw is high, 55 fl , everything else looked good.
10 days before I had my 4 months check up with my Hematologist.
My rdw was 45 fl, everything else looked good. Has anyone had this problem?
I do not take any other medications.
My next check up is not until the end of Febr. 2025. With the Christmas
and new Year season it is hard to get a hold of anybody. Will contact
my Dr. after new year.
Thank you for reading my post.
On another forum, I saw postings from individuals taking HU for ET, who have seen high RDW values in their blood work.
When they asked their doctors about it, they were told it that may be a side effect of HU, and not a cause for concern -- but maybe an indication that taking a multivitamin could be helpful.
Of course, only your own doctor can evaluate what the higher RDW count may mean for you.
I hope you won't have to wait a couple more months before having your question answered. It's impossible not to worry when we get "off" numbers.
Good morning, I was diagnosed Nov 2022 with ET. Taking 1000 mg
Hydroxuria daily. Feel great, used to be tired in the afternoon, not so
much anymore. My platelets are stable in the 350 to 390 range.
Female, 69 years old.
Had total Hysterectomy 6 weeks ago. I looked up my pre op
blood work, noticed that my Rdw is high, 55 fl , everything else looked good.
10 days before I had my 4 months check up with my Hematologist.
My rdw was 45 fl, everything else looked good. Has anyone had this problem?
I do not take any other medications.
My next check up is not until the end of Febr. 2025. With the Christmas
and new Year season it is hard to get a hold of anybody. Will contact
my Dr. after new year.
Thank you for reading my post.
On another forum, I saw postings from individuals taking HU for ET, who have seen high RDW values in their blood work.
When they asked their doctors about it, they were told it that may be a side effect of HU, and not a cause for concern -- but maybe an indication that taking a multivitamin could be helpful.
Of course, only your own doctor can evaluate what the higher RDW count may mean for you.
I hope you won't have to wait a couple more months before having your question answered. It's impossible not to worry when we get "off" numbers.
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Thank you !
Jennifer
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4 ReactionsGood question to discuss with your doc. I'm 70 and asked if I should continue aspirin at my check up in November. Doc said yes, research shows that it's very effective at preventing clots. She did say that I should only occasionally take Motrin and other analgesics with blood-thinning effects. So Tylenol is now my go-to for the weekly headaches and that vague flu-y feeling ET patients sometimes get in the afternoon/evening. I like Motrin better for arthritis/joint pain, but still try Tylenol first.
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4 ReactionsYes, I take a low-dose aspirin every day, as instructed by my oncologist.
There are good and bad things about any medicine, so please talk it over with your doctor.
If at some point, she or he thinks you don't need aspirin, please be sure to ask how to safely discontinue it.
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5 ReactionsDo you take asprin? I take asprin and hydres 500 maybe once my levels go down want need to continue the asprin
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1 ReactionFrom time to time I find helpful information on the myMPNteam forum.
But I dislike its intrusive social network aspect.
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1 ReactionThank you. I will ask my Hematologist. Hoping to get
the same answer.
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2 ReactionsWhat other forum do you use?
Yes, I also have high RDW. Doc said it's because the HU "excites" the blood system, and it's nothing to worry about. I ignore it now.
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4 ReactionsThank you for your reply. Wishing you happy and healthy 2025.
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2 ReactionsOn another forum, I saw postings from individuals taking HU for ET, who have seen high RDW values in their blood work.
When they asked their doctors about it, they were told it that may be a side effect of HU, and not a cause for concern -- but maybe an indication that taking a multivitamin could be helpful.
Of course, only your own doctor can evaluate what the higher RDW count may mean for you.
I hope you won't have to wait a couple more months before having your question answered. It's impossible not to worry when we get "off" numbers.
You've been through a lot! To better days ahead.
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