It’s go time! RP tomorrow

Posted by TM91 @tmestanas91, Mar 25 2:04pm

First I want to thank all of you for your comments and support! @jeffmarc @northoftheborder @heavyphil @retireddoc @kenhorse @rider51 @jc76 @ecurb @survivor5280 @fwintracy @michaelcharles special thanks. You all had great insights.
I hashed it out today with a great MO at NYU today and tomorrow I have RP with Dr Taneja. Radiation was certainly compelling and I was wavering on surgery but the decision is made. 61yrs ( my bday is day after surgery) G9, locally advanced, no lymph nodes or SV. Dr is going to take out one NV bundle and make a wide apical cut at the apex. ED and incontinence challenges ahead but there’s a chance we can get this. If not we have options. I went to CC Fl, UMiami, and a consult with MO and RO at Mayo Jax. They all said very treatable and even curable ( we love hearing that but we’ll see). I’ll take chronic condition for 25 yrs! Anyway. Thank you Boys. See you on the other side. Trip M.

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survivor5280 | @survivor5280 | Mar 28 3:18pm

In reply to @tmestanas91 "So far so good. It’s definitely a bit more painful than I thought. I’m in decent..." + (show)

I got it right between my shoulder blades so I rolled it out with a roller (you could use a wall corner) to get those muscles to release the gas. Once I started doing that the pain reduced substantially day by day. I knew this from my first Da Vinci surgery where the same thing happened - but for that I was 6 days in the hospital so they doped it out of me 😂.

jayhall | @jayhall | Mar 28 3:55pm

Good luck! 🙂 You will do great! 🙂 I will be thinking about you tomorrow. 🙂

VancouverIslandHiker | @vancouverislandhiker | Mar 29 10:35am

TM , how you doing ? Getting any sleep ? You may need stronger pain killers than OTC stuff .... I did for the first 7-8 days ...then it started to be routine . Hang in there and let us know of your progress . Any Biopsy yet ? What did the surgeon say ? Medical staff helpful ? God Bless. James , Vancouver Island .

TM91 | @tmestanas91 | Mar 29 11:13am

@vancouverislandhiker Thank you. I’m doing well I think. Just walked a city block this am. Eating some light food. Taking the stool softeners. Pain has gotten much better. Taking Tylenol. Took only one oxy mostly for that shoulder pain. Nothing back yet on pathology. Surgeon was happy about results. Gave me an indication that margins were good. NYU Langone was a great hospital. Feeling stronger each day ! Thanks for asking 💪🙏🤞

VancouverIslandHiker | @vancouverislandhiker | Mar 29 12:06pm

In reply to @tmestanas91 "@vancouverislandhiker Thank you. I’m doing well I think. Just walked a city block this am. Eating..." + (show)

TM - sounds like you’re on course. Let us know what the pathology is . What was your Gleason score? I had my prostatectomy done at roughly 4.5 or so. again, I was on the early side as I have a Steep family history of prostate cancer. Everything went really well and the anaesthesiologist was fabulous in giving me long acting painkillers. I caught a little bit of an infection in the hospital and had an elevated temperature therefore, I stayed in the hospital for seven days. I got the operation at Royal Columbia Hospital. That’s on the mainland in Vancouver, rather than getting it in Victoria. I moved over to Vancouver Island about one year before I was diagnosed. Therefore, I kept the same doctors and team in Vancouver. It’s a one hour and 20 minute ride to the mainland- however our health system pays for the trip by car or by aircraft if you want to take that 20 minute flight. If you’re staying longer than a day, they will pay for meals and everything else as well. So I kept the same Urology team. Review the pathology very closely. I had a 2 mm breach of the prostate. Not a large breach, but the doctor said it looked like it just happened although the lesion was small and the prostate was small. It did come back at 2 mm breach. The surgeon took extra precautions and took lots of Biopsies around the prostate and two lymph nodes and thankfully they were all negative. Therefore, review your pathology very closely. Here they freeze the tissues of the prostate indefinitely for further sampling and DNA testing. Maybe they can do that there? Gob Bless Sir . James

TM91 | @tmestanas91 | Mar 29 1:18pm

My Gleason 4+5. Hoping for downgrade with the pathology.. lesion was big and outside the capsule so he had some wood to chop which he did. I think decipher score/ pathology will tell the tale. My MO who is fantastic said positive margins are less concerning than pathology. I get that. Hopefully it’s at bay for a long time. I’m optimistic. Thx NYU has been fantastic at the US health system is great if you have access to the best. I feel very lucky and grateful.