1. < Osteoporosis & Bone Health

Is Tymlos appropriate if no fractures?

Posted by wondering1 @wondering1, Feb 23 6:21am

My endocrinologist has prescribed Tymlos for me. But I’ve never had a fracture. Is this appropriate timing for Tymlos? Would it be better to save it for the future?

I’m 61, T score at spine is -3.3. TBS is normal. I’ve already done 5 years on bisphosphates (but stopped 4 years ago).

Has anyone else been prescribed Tymlos before getting a fracture?

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mundy | @mundy | Mar 18 8:51am
In reply to @wondering1 "@mundy So sorry to hear about your fracture. Hope it is healing. Thanks for sharing your..." + (show)
@wondering1

@mundy So sorry to hear about your fracture. Hope it is healing. Thanks for sharing your experience. I’m leaning towards starting the Tymlos.

Jump to this post

@wondering1
How is decision making going for you? Where are you at?

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1 reply
wondering1 | @wondering1 | Mar 18 10:20am
In reply to @mundy "@wondering1 How is decision making going for you? Where are you at?" + (show)
@mundy

@wondering1
How is decision making going for you? Where are you at?

Jump to this post

I decided to wait before starting Tymlos, and got my endocrinologist to agree to wait a year to see if HRT does anything to help my bones.

In the meantime, I got a REMS bone scan that shows my osteoporosis (so is consistent with my DXAs), but shows my bone quality is quite good with relatively low fracture risk.

Feeling good about my decision to pause. Will reconsider Tymlos after I see what happens with my next DXA scan.

Thanks for asking, @mundy !

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2 replies
mundy | @mundy | Mar 19 9:02pm
In reply to @wondering1 "I decided to wait before starting Tymlos, and got my endocrinologist to agree to wait a..." + (show)
@wondering1

I decided to wait before starting Tymlos, and got my endocrinologist to agree to wait a year to see if HRT does anything to help my bones.

In the meantime, I got a REMS bone scan that shows my osteoporosis (so is consistent with my DXAs), but shows my bone quality is quite good with relatively low fracture risk.

Feeling good about my decision to pause. Will reconsider Tymlos after I see what happens with my next DXA scan.

Thanks for asking, @mundy !

Jump to this post

That is great news! Wishing you all the best with the HRT. Take care.

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loh | @loh | Mar 20 7:39am
In reply to @wondering1 "I decided to wait before starting Tymlos, and got my endocrinologist to agree to wait a..." + (show)
@wondering1

I decided to wait before starting Tymlos, and got my endocrinologist to agree to wait a year to see if HRT does anything to help my bones.

In the meantime, I got a REMS bone scan that shows my osteoporosis (so is consistent with my DXAs), but shows my bone quality is quite good with relatively low fracture risk.

Feeling good about my decision to pause. Will reconsider Tymlos after I see what happens with my next DXA scan.

Thanks for asking, @mundy !

Jump to this post

Sorry, I'm sure this is a dumb question...what's HRT?

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1 reply
idlehands | @idlehands | Mar 20 9:50am
In reply to @loh "Sorry, I'm sure this is a dumb question...what's HRT?" + (show)
@loh

Sorry, I'm sure this is a dumb question...what's HRT?

Jump to this post

Hormone replacement therapy. There are no dumb questions, only ones that haven't been answered yet.

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1 reply
loh | @loh | Mar 20 7:49pm
In reply to @idlehands "Hormone replacement therapy. There are no dumb questions, only ones that haven't been answered yet." + (show)
@idlehands

Hormone replacement therapy. There are no dumb questions, only ones that haven't been answered yet.

Jump to this post

Thank you 😊!

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hudsonlady | @hudsonlady | 6 days ago

I'm on Tymos because of bone X-rays. No fractures for years but some in the past (mostly from doing something stupid).

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daisylou | @daisylou | 5 days ago

I was prescribed Tymlos to prevent fractures . The only fracture I ever had was a hairline trauma fracture in my foot at age 22. No bone meds prior to this

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1 reply
wondering1 | @wondering1 | 5 days ago
In reply to @daisylou "I was prescribed Tymlos to prevent fractures . The only fracture I ever had was a..." + (show)
@daisylou

I was prescribed Tymlos to prevent fractures . The only fracture I ever had was a hairline trauma fracture in my foot at age 22. No bone meds prior to this

Jump to this post

@daisylou, have you been on it long? Any side effects? Any results yet? Thanks!

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