1. < Prostate Cancer

Is this true?

Posted by scottbeammeup @scottbeammeup, Aug 1, 2024

I was starting to do a lot better but then I read that it can take 18 months to get my testosterone back to my pre-ADT level (~600) when my six month Lupron shot wears off ? I also read that impotence from radiation kicks in at 18-24 months.

Does this mean I will NEVER get my sexuality back again, i.e. impotence will kick in just as my testosterone is finally recovering enough? I honestly don't think I can go on, or even WANT to go on, if this is the case. I used to have sex at least twice a week and haven't even been able to masturbate for four months now. What's the point of life with no intimacy?

I wasn't told ANY of this when I reluctantly started treatment and just found this out from doing online research. I finally felt I was making progress but now feel once again like my soul is crushed. I don't see any quality of life ahead of me at all.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

stevecando54 | @stevecando54 | Feb 13 6:08am
In reply to @scottbeammeup "I wanted to respond to you because I am in a much better place now emotionally..." + (show)
@scottbeammeup

I wanted to respond to you because I am in a much better place now emotionally and a considerably better place physically. I wrote a lot of these posts back in August when I was in the worst throes of ADT--I still had Lupron in my system AND Orgovyx which I had just started. Within a couple months, the Lupron washed out, I went to see a therapist, and also joined a gay men's prostate cancer support group and it's been a huge help to talk about these issues in real time. I started taking an antidepressant and it has helped considerably.

I went back to doing my volunteer work, re-established several friendships I had let go by the wayside, and just generally became more social and less isolated (I was isolating myself by choice). That alone has helped tremendously.

I've even learned to find some humor in things, such as when a doctor asked me "prior to ADT, how often did you have vaginal intercourse?" and I was able to truthfully respond "Never."

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Scott, I am happy you are doing better and even happier you are still here offering support to others, Keep up the fight. Best to all.

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