Is there help for VSS? Visual Snow Syndrome in my 7 yr old grandson.

Posted by suedix @suedix, Jan 8 9:35am

My grandson is very bright but has a severe fear of trying different foods. He eats only one thing all day and may switch to another over time. Ali g with other sensory issues he has been diagnosed with VSS and has been fit with orange tinted glasses which seem to clear up the snow he sees when he reads, etc. Is there something my daughter may have missed in helping him. It’s been very difficult.

Interested in more discussions like this? Go to the Eye Conditions Support Group.

Colleen Young, Connect Director | @colleenyoung | Feb 27 1:14pm

@suedix, Dr. Carrie Robertson, a Mayo Clinic neurologist, is a leading specialist on visual snow syndrome. She explains the rare disorder and what can be done to treat it in this video that may be helpful for you and your daughter in helping your grandson.

Have you considered an appointment at Mayo Clinic Children's Center?

suedix | @suedix | Feb 27 4:19pm

Thank you. I mentioned it to my daughter and she seems to think she’s hit all the experts in the Chicago area, but I’m going to mention it to her again thank you for your information. I greatly appreciate it.