Is there a list of the top NET specialists?

Posted by jagzandsherz @jagzandsherz, Jul 23 12:00pm

How can we find a list of the best NET specialists for a second opinion?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

sophiarose | @sophiarose | 4 days ago

In reply to @jagzandsherz "@sophiarose Thanks for the info. What are the details for the Thursday call?" + (show)

@jagzandsherz
I sent Jennifer from Mayo who runs the meetings an email to get you started
It’s been soo many years I forgot how I registered
If you don’t hear from her let me know

jagzandsherz | @jagzandsherz | 4 days ago

In reply to @sophiarose "@jagzandsherz I sent Jennifer from Mayo who runs the meetings an email to get you started..." + (show)

@sophiarose Thank you so much!

Turkey, Volunteer Mentor | @tomrennie | 4 days ago

In reply to @jagzandsherz "@sophiarose Thank you so much!" + (show)

@jagzandsherz @sophiarose We just updated the link on the NET Support Group call. It is the easiest way to get on the Zoom call. Here it is:
https://connect.mayoclinic.org/event/neuroendocrine-tumor-support-group-meeting-zebras-37a060e8/

sophiarose | @sophiarose | 4 days ago

In reply to @jagzandsherz "@sophiarose Thank you so much!" + (show)

Good morning
Try this link today they are going to have a question/answer lunch with the experts
It will give you a lot of information
NCF.net/LWTE/Aug2026
I hope you get this message in time

jagzandsherz | @jagzandsherz | 4 days ago

In reply to @sophiarose "Good morning Try this link today they are going to have a question/answer lunch with the..." + (show)

@sophiarose The link does not work

sophiarose | @sophiarose | 4 days ago

Maybe just try NCF.net

jagzandsherz | @jagzandsherz | 3 days ago

In reply to @sophiarose "Maybe just try NCF.net" + (show)

@sophiarose thank you!

sophiarose | @sophiarose | 3 days ago

Hope to see you next week

jerrydanhuffman | @jerrydanhuffman | 2 days ago

Neuroendocrine Tumor Research Foundation maintains a database of "specialists". They also produce interesting forums on NET cancer with both specialist physicians as moderators and patients as audience and vice versa.