Is the stapes surgery for otosclorosis worth it?

Posted by kayteexoxo @kayteexoxo, Feb 16 10:53pm

Hi there, I have otosclorosis and have been wearing hearing aids for a few years now. I’m thinking about getting the stapes surgery but wanted to know peoples thoughts.

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Hi, I have otosclerosis bilaterally. I’m now 52. I had a stapes implant in 1996 in 1 ear. It improved my hearing tremendously. The surgery was so helpful I never needed hearing aids. After 20+ years I decided to get a hearing aid in the ear that has the implant. That ear is still my better ear for hearing. I wish I had done the surgery in both ears in 1996.

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Back in 2011 I had a Stapedotomy not a Stapedectomy ( a stapedectomy typically removes the entire stapes footplate and has it replaced with a micro prosthesis. During a stapedotomy, a prosthesis is positioned within the precisely-made and measured hole that is created in the footplate of the stapes bone.). I just needed it in one ear and my hearing improved immediately and I had no problems.
I have read that the issue is finding an experienced doctor in this procedure. Originally there were a lot of people needing this procedure but with measles vaccine (measles thought to be one of the causes), there are now far fewer cases.
I would only want an experienced surgeon for this procedure. At first I refused to do it - I was still working and was concerned about potential complications, so I just got a hearing aid in one ear. When I retired, I fortunately moved close to a well know center that trained other doctors in the procedure.

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I had a stapedectomy 20 years ago because my Stapes bone had collapsed and I had no hearing in the left ear. Sound couldn't get through the little opening to the cochlea. So for me it was a necessity. The Stapes surgery allowed me to hear again in that ear at a moderate to severe level. With powerful hearing aids I was able to keep working as a teacher. My other ear collapsed 5 years later and I had the surgery again. So the surgery allows the opening to the cochlea to be clear again so that the new stapes bone can vibrate sounds through it. However my Otosclerosis also caused sensorineural hearing loss in my inner ear, which never gets better - it just keeps deteriorating until someone discovers how to regenerate the hairs in the cochlea . But the surgeries allowed me to hear (with assistance) for 20 more years. Busy last year the sensorineural loss in my left ear got too great and I received a cochlear implant. But with the advances in hearing aid technology and assistive listening devices like the Roger On plus captioning apps, living with the hearing aids for 20 years was a good result for me. Now I have to relearn ow to hear in my left ear with the implant.

Only your ENT or surgeon can tell you whether your stapes bone is damaged enough now to replace. Insurance would want to know that as well. Good luck Mike M

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