Is Neuropathy curable or just treatable? Does anyone know?

Hello @intlguyct, Welcome to Connect. I wished I had some good answers for you. I know it's a struggle dealing with neuropathy whether you know the cause or not and it can be painful and scary. I also have idiopathic neuropathy but fortunate for me I only have the numbness and some minor tingling. The reality is that knowing the cause may or may not be helpful in treating the symptoms. My best advice I have to offer is to learn as much as you can about your condition and what treatment options are available that might provide some relief. Two of the best sites to learn more that have helped me are:
--- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/
--- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview.

I shared my neuropathy journey in another discussion here - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/comment/310341/.

You mentioned that the gabapentin and pregabalin didn't work. Did your neurologist offer any other treatments or suggestions to help with the pain?

Not sure if this is helpful but here goes.
1. Had my neck cracked not a problem usually. This time I was paralysed. MRI showed very old injury maybe whiplash from car accident. Caused a spur to grow from c6 into my spinal cord.
2. Creating stress leading to shingles ear,eye,mouth ,body, but the real kicker from a professor seems to think down my spinal cord as it was in my head everywhere … he called it Neuro autoimmune
3. Garlic, onion, corn, mushrooms lots more sent me straight to the bathroom.
apparently gut and spinal cord develop at same time
4. Had spur removed from my spinal cord, cage put over c567
5 gut is better. Neck is crap but at least I won’t end up in a wheelchair if I was on a kids ride, fell over or car accident.
6 I have lightening twitches in my legs, if I scratch or rub my legs it feels like a horse has kicked me. My toes feel like a spider has bit one occasionally. Hands and feet freezing.
7. Lost most of my hair .. grew back but it is starting again.
8. 17,000 ectopic heart beats per day … most people get one a year. Inflammation around my heart and meds are not working
9. Can you imagine the amount of medication over five years. Lyrica, Methotrexate, mycophenloate. Pale is .
10. Lupus eating holes in my hip so now off for a hip replacement
How on earth do we deal with this for years to come.
I am truly hoping someone will have some guidence , and for all those going through any of this my heart goes out to you
The way I cope ….. I have lost most of my family to suicude … so I am on call To help families and first responders after suicide, it is so very rewarding.
I have grandchildren that come running up for a biggest hug for Grammy. I would just like some light at the end if the tunnel
Take care everyone

You’re welcome. Let us know how things evolve.

Whether it’s treatable or not is up to the individual who’s being treated but doubtful it’s curable since we cannot regrow peripheral nerves. Shame we cannot develop alternate pathways for nerves like our blood supply network does when it encounters a road block.

I agree that it would be great to have someone figure out how to regenerate the damage. I have been using a CBD oil that is definitely making my legs feel better, my arthritis too; it is from Boulder, CO; called Moon Mother. Hope this will help others.

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I can't talk about other people with Neuropathy but two different Neuroopathy doctors suggested that I use Vitamin B12 daily and Alpha Lipoic acid twice daily. Both supplements really seem to help the tingling in my feet and the pain has subsided. Jack

I can only hope that the suggestions I put out there will help the people like me and you who have Neuropathy.

What dosage of each do you take?