Is facial twitching due to neuropathy?

Posted by Karen @fue, Sep 19, 2023

Tests show I have motor and sensory neuropathy, definitely in arms and legs, with nerve pain in front torso. For a few years I have had facial twitching, usually daily, moving between eyelids, under eye, lips, chin and the tip of my nose, only one area at a time. These are irritating but only noticeable by me. I sometimes have mild headaches lasting all day. I wake a lot in the night and my REM has recently become extremely low. Now I have developed a subconjunctival haemorrhage in my right eye. Are these all connected?

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I had eyelid twitching (both upper and lower and both eyes) for about 9 months - I thought it was stress related. It progressed to muscle fasciculations in my legs especially at night when I went to sleep. My sleep was poor and my stress from changing jobs was high. I tried using melatonin and everything got much worse with muscle twitching all over my body so I never used melatonin again. I started to have some clumsiness with my hands and tripping over thresholds with my feet, and lastly for a few weeks I started to bite the back side of my tongue repeatedly on a daily basis while eating or talking, sometimes several times.

I finally figured out what was causing it. For the entire time I had been regularly taking Costo gummies and found this story about B6 toxicity - search for this story "‘I couldn’t walk’: GP’s personal story of vitamin B6 toxicity"

So I inventoried my diet and found B6 added to my cheerios that I ate for breakfast daily with a banana - around 0.2 mg. The Gummies which were up to 4 per day, I usually ate two were .5 mg each so 1 mg per day. The melatonin lists no b6, but apparently they put between 5-10 mg of B6 in that. This level of B6 likely wouldn't be normally registered as toxic for a normal person - up to 25 mg per day in the EU is normal.

So after stopping all of those, my symptoms resolved completly after about 3 months. Now I even have to be careful of B6 in things like peanuts - I can eat some but not too much. If I eat too much I feel like a buzzing in my legs when I sleep.

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Hi
That was me exactly.
Atm mine seems to have calmed down a bit, I still get facial twitches occasionally. Every time I have an eyesight test, I have an OCT as well just to put my mind at rest. There is hope. Just try not to get too stressed, it doesn't help. Good luck with the future.

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Profile picture for Karen @fue

Hi
That was me exactly.
Atm mine seems to have calmed down a bit, I still get facial twitches occasionally. Every time I have an eyesight test, I have an OCT as well just to put my mind at rest. There is hope. Just try not to get too stressed, it doesn't help. Good luck with the future.

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@fue . Most likely u are very low in vitamin B12.
Most people drink alcohol. That shuts millions of intestine pores, preventing a absorption. We need , 4.5 micrograms daily. That's a decent steak. Few people eat enough animal protein. That's the only source. Good luck.
,

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Thank you. I very rarely drink alcohol. I do, however struggle to eat 100g of protein per day.

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