Is brachytherapy necessary to reduce recurrence of endometrial cancer?

Posted by zhangh73 @zhangh73, May 3 11:29pm

I was diagnosed Grade 1 Stage 1A endormetrial cancer almost 3 months ago, I consult 4 doctors ( 2 oncologists, 2 radiation oncologists) about if need to do brachytherapy, they seems not recommend, but up to me to do it or not, brachy can reduce to half for the recurrent, do you think from 7% to 3-4% reduce recurrent is worthy to try, any short and long side effect for brachytherapy to show with me, is possible to get 2nd cancer years later through brachytherapy? Thanks

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

I received three sessions of Brachy therapy without anesthesia. There was a physicist present to adjust the dosage. I had no side effects. I do use a dilator twice weekly after the sessions completed.

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@therese73

My radiation oncologist is telling me I will need anesthesia for the 3-4 Bracytherapy treatments. Is there a way to do the treatments without general anesthesia? Thanks

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i'm not an expert but my understanding of brachytherapy is there are many types, doses, and duration.

the big difference in type is intracavity (wand inserted in a body cavity) and interstitial implantation (inserts needles into the tissue).

since my cancer was caught early a radical hysterectomy and intracavity brachytherapy is sufficient for me. i only need to lay still for 5 minutes for my brachytherapy and i do not have any issues with my vaginal cavity that would prevent the proper insertion and holding in place of the brachytherapy wand. i do not experience any discomfort from the wand or the radiation as it is being delivered.

if you doctor feels your anatomy would have pain by having the brachytherapy wand inserted they might think it's best to sedate you on some level.

if the length of the treatment needs to be long due to later stage or grade it might be best to have a level of sedation because you need to lay still and that might be hard to do for a long period of time.

interstitial vaginal brachytherapy involves a needle or multiple needles. i do not personally know anyone who has had this type of treatment but in my little understanding this is more common when the cancer has moved beyond the uterus like the cervix, vaginal canal, the tissue between the vagina and anus, etc.

my understanding of interstitial brachytherapy, it is always done with some form of sedation since it would be very hard for anyone to be still long enough so the needles do not shift in any way. twilight sedation would not be sufficient because with twilight (typically used for colonoscopy) many people can actually move their arms and do try to swat the scope - the nurse that is present during a colonoscopy is able to hold the arm so you can't swat the scope.

when you have radiation you are left completely alone is the room. the staff can not be exposed to endless radiation. they can see you on a camera and if you're awake communication with them.

given that, if the doctor knows before hand that you will experience discomfort that would make you move about or to try to take the equipment out of your body you'll have to be sedated completely.

ask you doctor why you would have to be sedated - i'm sure they would be happy to discuss and that your doctor feels it's the best option in your situation. just explain that you've in a cancer support group and the typical is without sedation.

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Thank you for your kind response. The doctor told me the wand will go in my uterus because the surgeon stopped doing the hysterectomy because of adhesions from a prior surgery.

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@therese73

My radiation oncologist is telling me I will need anesthesia for the 3-4 Bracytherapy treatments. Is there a way to do the treatments without general anesthesia? Thanks

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Is your brachytherapy lie ir high dose? The low dose can involve a ring and tandem being left in place for an extended time frame. There is also another that involves a Schmitt sleeve . I had stage 3 endometrial cancer and had chemo external beam and 3 high dose brachytherapy treatments. The brachytherapy was easy. Uncomfortable but not painful. Had no anesthesia no pain meds and none were needed. It was over on a matter of minutes

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@therese73

Thank you for your kind response. The doctor told me the wand will go in my uterus because the surgeon stopped doing the hysterectomy because of adhesions from a prior surgery.

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i'm so sorry your hysterectomy had complications and the surgery had to stop. it makes sense, entering the uterus would be painful if you were awake.

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@klue

Blessings to you Barb - i'm so happy to see you on the forum. It good that you are researching and putting so much thought into a very hard decision.

I have had 3 treatments already. the hardest part so far is holding my full bladder. part of the protocol is to drink a bottle of water 30 minutes before treatment so your bladder is full while they do the procedure. from the time i arrive till the time i leave the entire visit is around 40-45 minutes. the actual radiation takes 5 minutes and all that other time is spent getting me setup on the table, inserting the wand, and doing a quick CT scan of the area to make sure the want is in the right place, my bladder is properly filled, and i have an empty bowel.
once that is confirmed the treatment begins. it really doesn't bother me much in the moment. they will put on music for you (i like The Beatles) and i typically recite the Hail Mary and Our Father along with praying for everyone here on the forum and thanking God for take such good care of all of us.

the next day i have a headache but Goody Powder (you can buy it at Walmart) takes care of it (i don't need to take my migraine meds). i did have some pelvic cramps but only on the first treatment. I have nausea meds and i did take one yesterday along with a gas pill because i was bloated.

my doctor did offer to give me anti anxiety meds and i'm sure if you ask they would give you some too. they offer it to me because i have sexual trauma in my history and there is a man as part of the team. i decided to just have them keep him out of the room when i'm there instead of taking the pill.

i did worry about vaginal scarring but the doctor said the chances are low because it's just 5 treatments at a very low dose. i'm 61 yo and i have Grade 1 Stage 1B. the doctor said she will give me a vaginal dilator that i'm to use a couple times a week for 3 months.

all in all, i'm amazed how little the treatment is effecting me and i'm happy that the women on this forum helped me to be comfortable with the process.

the first time when they were fitting me for the wand it did hurt a little bit but i've never bled, had a discharge, or diarrhea.

i'm very grateful to the Lord for creating people who are so smart and inventive to come up with these types of treatments for us. it is a blessing in my life and i do believe the Lord is happy with my decision to accept the treatments.

i pray you are feeling healthy and strong and that the Lord is walking every step with you thru this process.

i know that reading some of the stories on here it's a scary decision. the lucky thing for both you and I is that we have low stage and grade so we don't need 25 brachy treatments. i am getting 5 (my last 2 will be on Tuesday and Wednesday). your treatment might only be 3 sessions at a low dose - which is an excellent place to be with very few side effects and most likely none of the side effect will be a life long condition. the upside of the treatment is an extremely low recurrence rate. you will have more time with your family and your faith family.

please always feel you can reach out to me and i will always be praying for you.

this christian song really helped me with my cancer. you can find it on youtube just enter the following into the search box.......... Another One (Chris Brown) Elevation Worship

may the Lord bless you Barb.

Your Sister in Christ
Kelly

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Kelly, thanks for such a wonderful and thoughtful response to my concerns. I am still researching and have found studies I hope will help me make a truly fact based and educated decision. My husband and I have talked about each one and will both be interested in hearing what my gynecology oncologist and the radiation oncologist have to say about our questions and concerns. We both want honesty and facts, not just “best guesses”.
I am praying for you daily and know the Lord will be with you during these last two treatments. I’ll see my GO this Friday and I will let you know what he says. Hopefully I am healed enough at this 6 week point to move forward with whatever decision we make.
You sister in Christ,
Barb
P.s. I love the Chris Brown song! Added it to my playlist!

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I had three brachytherapy treatments and did not have anesthesia or need any pain pills. Was “easy “ a little uncomfortable but not painful. Take care

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I wish I was offered sedation! I begged for it and called other treatment centers to find one that would offer sedation and couldn't find any. Mine was extremely painful until finally the doctor ordered me Percocet and Xanax to take prior to the next procedure plus they gave me some morphine at the clinic then I was fine. I had 4 more after that.

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@riverland889

I wish I was offered sedation! I begged for it and called other treatment centers to find one that would offer sedation and couldn't find any. Mine was extremely painful until finally the doctor ordered me Percocet and Xanax to take prior to the next procedure plus they gave me some morphine at the clinic then I was fine. I had 4 more after that.

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@riverland889 I had the same experience as @aardvark2018 with my brachytherapy sessions. It was a little uncomfortable but the radiation oncology physician and team did a lot to try to help me to feel comfortable.

I've seen different experiences here on Mayo Clinic Connect with brachytherapy for gynecological cancers. Some people have had the painful experience that you've described. I'm sure there are variations in the devices that are used and I wondered if maybe the cylinder applicator that was used for your sessions was overly too large for you? Or are you referring to when the radiation was administered through the device?

I'm glad that your doctor listened to you and order pain meds for you to take.

I'm going to ask for some expert advice from radiation oncology at Mayo Clinic about this.

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@naturegirl5

@riverland889 I had the same experience as @aardvark2018 with my brachytherapy sessions. It was a little uncomfortable but the radiation oncology physician and team did a lot to try to help me to feel comfortable.

I've seen different experiences here on Mayo Clinic Connect with brachytherapy for gynecological cancers. Some people have had the painful experience that you've described. I'm sure there are variations in the devices that are used and I wondered if maybe the cylinder applicator that was used for your sessions was overly too large for you? Or are you referring to when the radiation was administered through the device?

I'm glad that your doctor listened to you and order pain meds for you to take.

I'm going to ask for some expert advice from radiation oncology at Mayo Clinic about this.

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No, the actual radiation did not hurt at all and yes, one of the things they modified to help me feel better was they used a smaller cylinder. I had forgotten that. Thank you so much for responding and of course all your support. I’m still on my immunotherapy every six weeks so far so good, but we never know about the future. I take it one blessed day at a time.

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