Is anyone on carfilzomib (Kyprolis) for multiple myeloma?

Posted by tally9004 @tally9004, Jul 15 12:14pm

I have been on carfilzomib, dex, lenalidomide and Daratumumab for five cycles. Both carilzomib and lenalidomide can caus blood in urine. I have had this issue come up and the doctors who prescribed the cancer drugs don't think the drugs are causing the problem. Now I am going to have to do a cytoscopy for the bleeding. Just wondering if anyone has had blood in their urine from the cancer drugs. Thanks.

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Colleen Young, Connect Director | @colleenyoung | Jul 20 8:15pm

@tally9004, I'm tagging a few other members like @meg1685 @pom @deajay @oregonami58 @lisal64, who I believe have experience with carfilzomib (Kyprolis) or the combination Daratumumab, Carfilzomib, Lenalidomide, and Dexamethasone (Dara-KRd).

Tally, I'm glad that you are investigating further to determine why you have blood in your urine. When is you cytoscopy?

meg1685 | @meg1685 | Jul 20 9:32pm

Hi Tally,

I was on isatuximab/lenalidomide/velcade/dex for 4 cycles, then carfilzomib/velcade/dex/pomalidomide for 2 cycles before transplant/complete remission. Now I'm on carfilzomib/daratumumab/pomalidomide/dex in slightly lower doses and less frequently, as maintenance therapy. I have not had blood in my urine. It's good they are looking further to find what's causing this. I hope they figure it out really soon for you!

Meg

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