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Is anyone going with hormone therapy alone?
Husband has Gleason 9. Cancer is contained in the prostate. Radiation from 2013 cancer makes surgery now risky bc of fibrosis and not healing. Has been on Lupron for 3 months, another shot Sept. 4 weeks in bicludimyde. He also has a colostomy from 2013, so it has to be open surgery. We are very concerned about no surgery and going hormone therapy alone. Surgery is 2 weeks and we wanna cancel.
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Hi We live in Canada too and will be undergoing surgery at Credit Valley Hospital. My surgeon is great but heard he does not do salvation surgery. You might want to check with Doctor Tony Fenneli in Toronto. He has the topmost ratings.
Did you confirm cancer confined to prostate by PET scan or MRI? What was his PSA doing over the past year or so?
Had both but PET confirmed that it is confined. PSA at 14 since last January. With Lupron it is now under 2
Unless you have had radiation having your PSA only dropped to 2 After such a long time means that you probably have a problem. The vast majority of people on ADT have a PSA below .1
If your doctors are not doing something about this, you need to see a different medical team. Get a second opinion from a center of excellence, You should not let this continue for a long time.
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5 ReactionsMy husband did "just" ADT. the shot and the pills for a few months, now he's in the middle of chemo as well. I asked the doctor what the survival rate is with the two ADTs without chemo vs the triple therapy (two ADTs plus chemo) and again it's "JUST" statistics, but without the chemo it shaves off at least a year.
Of course they can't really say, but I wanted to know.
Actually, it’s not two ADT‘s Bea. It’s an ADT plus an ARSI (Zytiga or a lutamide).
I don’t think any doctor can even guess what the overall survival of a patient is going to be.
Last week I was in a Monthly UCSF online meeting. One guy was really worried about the fact that he was only given a couple of years. Two or three other guys in the group said they had been given short time life expectancies, but they were way beyond the estimates made by the doctors and consider them sort of a joke.
It really is annoying when I hear these life expectancy estimates, They are almost always wrong.
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2 ReactionsTrue! They did say my husband is young and healthy otherwise so he'd probably longer, of course nobody knows.
When you say.. shaves off a year, do you mean of his life? How long has he been on this?. And what is his age?
Thanks for your reply
The prostate cancer is metastatic and all over his body.... Statistics say 30% make it 5 years on the triple therapy but without chemo I guess it's 4!
My husband is 55 so rather young for this diagnosis and he has nothing else wrong, eats right, exercises etc.
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2 ReactionsMy husband had Proton therapy 6 years ago for prostate cancer. Had no problems with it but cancer returned 5 years later. Surgery is not an option per his doctors advice because of the previous radiation, bad out ways the good. He is going through hormone therapy using ORGOVYX. He is having frequent hot flashes he says he can deal with however I see him going through extreme tiredness, not feeling like himself, and depression. (He has been on meds for depression for years.) I hate seeing him not being able to do things like he use to. Gets extremely tired after an hour or so of work. He is 76 by the way. Anyone else going through this and have any advice?