Is anyone terrified of coughing up blood, and how do you deal with it?

Posted by karen10225 @karen10225, May 30 5:34pm

I’ve had bronchiectasis for around 20 years with relatively no problems until early 2020 when I was diagnosed with mycobacterium simiae. I cough up a lot of mucus throughout the day, sometimes with blood I’m it. Several times I have coughed up 1/8 - 1/4 cup of blood, which totally terrifies me. I would love to connect with others who are terrified by bleeding, and also find out how you deal with it and what doctors have done to stop it.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Sue, Volunteer Mentor | @sueinmn | May 30 7:44pm

Here is a Webinar from the NTMir group about hemoptysis:
https://www.youtube.com/watch?v=JkKAFFIY1_0&t=21s

And here is a discussion between members who have experienced it, so you can connect with them. Simply click on a message that interests you and reply to it. This will notify the poster that you are looking for answers.
https://connect.mayoclinic.org/discussion/does-anyone-else-spit-up-blood-and-blood-clots/
Sue

karen10225 | @karen10225 | May 30 11:53pm

In reply to @sueinmn "Here is a Webinar from the NTMir group about hemoptysis: https://www.youtube.com/watch?v=JkKAFFIY1_0&t=21s And here is a discussion..." + (show)

Thank you so much.

Rick | @rstel7272 | May 31 8:41am

I always found these NJH guidelines helpful

reneemc | @reneemc | May 31 2:22pm

In reply to @rstel7272 "I always found these NJH guidelines helpful" + (show)

I cough blood often. Terrifies me every time. My Drs don’t seem concerned. I don’t want to ever have to go to the hospital with this because I don’t know what they might do. I know arterial blood gas test is extremely painful.