Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Posted by panevills @panevills, 13 hours ago

I've received radiation treatment for tonsil and throat cancer. Now the doctor wants to treat CLL with Brukinsa. Has anyone used Brukinsa? It is very expensive and comes with lots of side effects which would appear to be very life limiting. What other options are there? Is taking medication for CLL life long?

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melij | @melij | 1 hour ago

Hi Panevills

I am being treated for CLL and decided on Obinituzamab and venetoclax. There have been very few side effects and i am more than half way through treatment. While the first few infusions of Obin didn’t go well, the team quickly saw my reactions, hard to breath they stopped the treatment and restarted it slowly, after giving steroids.
Venetoclax gave me some nausea which was taken care of with Olanzapine.For the most part i have sailed into remission and am done infusions and just taking venetoclax to finish up.
The reason I decided to go with this treatment is because it can be retaken if I go out of remission which on average is supposed to be 7 years…Abbvie care looked after the cost of my treatments which i am so greatful for.

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