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Anyone on the Ipilimumab (Yervoy) and Nivolumab (Opdivo) combo?
Greetings - I have stage 4 adenocarcinoma of the lungs. I’ve already gone through two rounds of chemo and radiation. I’ve recently switched to a new oncologist in a new hospital system. He has put me through the paces of tests including more CT and PET scans as well as a biopsy. I’ve had these things done with prior cancer team but he wanted to retest and I was fine with that.
After completing the tests I met with him this week and he is suggesting double immunotherapy. A combination of Ipilumab and Nivolumab with one every two weeks and the other every six weeks.
I’ve never had immunotherapy before. There was some hesitation due to a bout of colitis I had many years ago. But we are going ahead with it.
Has anyone taken these two immunotherapy drugs? What was your experience with it?
Thank you in advance for your feedback!
Maureen
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I am 3 weeks post-op. The plan is to continue the immunotherapy for 2 years. I see my oncologist in mid-may depending on what pathology shows they may want to theow in a few rounds of chemotherapy, however nothing is confirmed until they see the report.
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2 ReactionsI’m curious how you’re doing with your port. I had one put in in early March. The doc said I could use Tylenol for 2-3 days but I had quite a bit of pain and discomfort several weeks. I hope you’re doing well with little pain or discomfort.
Yes- same here - I’m on week 2 and it’s much better but still tender and bruised. I used it after 5 days - it was great- worth the pain. I think after this week it should be all healed and then supposedly you don’t even know it’s there - not sure about that.
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1 ReactionI had one infusion ipi/nivo
Now on second infusion of nivo only
I had chills fever and headache one week after infusion they think is from a viral infection
Otherwise so far so good
The nurses say they have many patients on this combo but have not heard from many online.
Anyone else have this combo?