Just diagnosed with invasive lobular carcinoma (ILC): Any advice?

Stage 2 is considered an early stage. They will advise you on whether you need chemo, radiation and what kind of surgery depending on how big your tumour is and what kind it is. They will run alot of tests at first and then talk to you about what would be best to do.
It is alot to process at first and scary but you will get through it. Ask questions if you arent sure of anything they are great at helping I had stage 2 as well. Try and keep a positive attitude because that really does help. Thinking of you

I wish I had asked everyone I initially saw in those early days to tell me what makes ILC different from the ductal type of breast cancer. I may have understood why a moderate sized tumor emerged from pathology almost tripled in size. I’m sure I would’ve had a greater appreciation for the additional tests and scans if I had had more data. Knowledge is your power but keep a very open mind throughout the process. I was positive that, due to a lung condition, I would not have radiation therapy. Well, I had 33 sessions but when your margins still have cancer cells and the radiation oncologist gives you great information it’s actually a no brainer.
I tried to step away from myself and consider the whole process as happening to someone else. You tend to get a totally different perspective. Hugs as you begin your journey. You have lots of caring companions.

Did you have a side effect from Tamoxifen and aromatase inhibitors? Looks like I will have before and after the surgery one of them

They tried tamoxifen to shrink mine for 5 mths. It did not work. I had double mastectomy and full reconstruction then chemo and radiation. After that back on tamoxifen for a few years, now just switched to an aromatase inhibitor, see how that goes. You're initial pathology staging is not the true one, that comes when they remove it and test it. So don't panic at the size they say. Biology plays a part too.

Thank you Queue555 for the reply. Today I did find I have ER+, HER2- ILC. Did somebody have the experience with the hormone therapy? Wish you all the best!

Is this ER or PR or HER 2?
Triple negative?

Wishing yiu the best..I am just behind you and ithers..hoping those ahead are faring well and can share insight and awareness they have uncovered on their journey..wishes for health and blessings

Hi there all

I am new to this group, a husband with my wife (just turned 50) diagnosed with ILC, and similar to a recent post, we have our first appointment tomorrow to get all the final detailed results after the MRI, Mammograms, and scan. We have been advised its in the lymph nodes as well but of course more details tomorrow.

Again any pointers on what to ask whilst we are there.. also how open and honest are they actually about the diagnosis, the outlook and the reality of it all.. did people find in general they are totally honest and open about it.. ? We have 2 youngish children.. so of course like everyone i guess we need to know all...

@francinemoran, I hope you saw the helpful, supportive posts from @momc and @gbnana who also have invasive lobular cancer and are walking this path just slightly ahead of you. Like you, @nadejda was only just diagnosed and wanting to walk alongside you as you both take this journey at similar times.

Francine, how did your appointment go? Did you discuss treatment options?

Hello everybody, I am 64, new to this group. Diagnosed with invasive lobular carcinoma 6mm 3 weeks ago. Next week will be my first appointment with oncologist. Could you, please, advise me what to ask?
How were your appointments, francinemoran?