Just diagnosed with invasive lobular carcinoma (ILC): Any advice?
I’ve just found out i have invasive lobular carcinoma. Stage 2. I have an appointment with a surgeon today and an oncologist next week. Not sure how all this works makes me nervous. Any help would be appreciated
Interested in more discussions like this? Go to the Breast Cancer Support Group.
Most doctors will be honest about diagnosis, treatment and prognosis. Insist on it.
I was there 14 years ago. Stay positive.
Thank you for the information. I requested to join the group.
Another really good resource is the lobular breast cancer (ILC) science and support Facebook group. Extremely knowledgeable and totally supportive. Best of luck to you.
Hello and thank you. Yes, I have someone going with me. I plan on being involved here with the group for information and support so I am grateful in advance to everyone here 🙂
@jenmeier
Welcome Mayo Connect. You will find many women who are in various stages of treatment for breast cancer. It is great support system for both emotion and practical advice Someone in this group has probably asked the same question you are wondering about.
Patience is key at this time, there is lot of information that will come your way.
Take a note book with you to appointments. Also, if your clinic has online portal, read the provider 's notes after appointment to verify what you heard.
Will someone be going with you to your appointment?
Right there with you. Just found out yesterday. I don’t know much about the histology because the addendum report wasn’t attached to the pathology but the woman over the phone told me it has not spread to other parts of my body. My appointments are lined up for Tuesday. Thinking of you. Let’s stay connected and support each other. Jen
thank you that was nice to read !
Excellent advice. I, too, had ILC in my left breast over 20 years ago. Two years ago at age 82, I had a left breast mastectomy; was on Letrozole for 5 years. Have been off it only a few months but am doing fine. I enjoy life and will not think about what will be. As my grandfather, and you, Kern Booker, state 90+ percent of the time, nothing happens. The other 10 percent will occur whether or not we think about it; so worrying serves no healthy purpose. I hope everyone heeds your advice. Best wishes for an stress-free life, Francine Moran, and every single one of us.
hi if you do need to have a masectomy , the thought of it is a lot worse than having it . i had one went very well . stage two , can be controlled . you will be good . dont worry about what you cant control or the what ifs . most of it never happens anyway . everyone is there to help you .