1. < Breast Cancer

Just diagnosed with invasive lobular carcinoma (ILC): Any advice?

Posted by francinemoran @francinemoran, Jan 4, 2023

I’ve just found out i have invasive lobular carcinoma. Stage 2. I have an appointment with a surgeon today and an oncologist next week. Not sure how all this works makes me nervous. Any help would be appreciated

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gardenfairy | @gardenfairy | Jun 9, 2024
In reply to @jenmeier "Right there with you. Just found out yesterday. I don’t know much about the histology because..." + (show)
@jenmeier

Right there with you. Just found out yesterday. I don’t know much about the histology because the addendum report wasn’t attached to the pathology but the woman over the phone told me it has not spread to other parts of my body. My appointments are lined up for Tuesday. Thinking of you. Let’s stay connected and support each other. Jen

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So sorry to hear you are going through this. I am curious how they determined it had not spread to other areas?

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1 reply
reginacrick | @reginacrick | Jun 9, 2024
In reply to @cobb "Another really good resource is the lobular breast cancer (ILC) science and support Facebook group. Extremely..." + (show)
@cobb

Another really good resource is the lobular breast cancer (ILC) science and support Facebook group. Extremely knowledgeable and totally supportive. Best of luck to you.

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Do you have the link? What exactly is the name of the page? Thanks

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beachlover71 | @beachlover71 | Jun 8, 2024
In reply to @cobb "Another really good resource is the lobular breast cancer (ILC) science and support Facebook group. Extremely..." + (show)
@cobb

Another really good resource is the lobular breast cancer (ILC) science and support Facebook group. Extremely knowledgeable and totally supportive. Best of luck to you.

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I am recently diagnosed with invasive ductal carcinoma. Found on annual mammogram. Had biopsies. Found surgeon, had lumpectomy May of this year.,oncotype19 so no chemotherapy. Awaiting appointment with Radiation.Next. Have an oncologist. She wants me to start a hormonal.

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lepa13 | @lepa13 | Jun 8, 2024
In reply to @husbandsupportingthis "Hi there all I am new to this group, a husband with my wife (just turned..." + (show)
@husbandsupportingthis

Hi there all

I am new to this group, a husband with my wife (just turned 50) diagnosed with ILC, and similar to a recent post, we have our first appointment tomorrow to get all the final detailed results after the MRI, Mammograms, and scan. We have been advised its in the lymph nodes as well but of course more details tomorrow.

Again any pointers on what to ask whilst we are there.. also how open and honest are they actually about the diagnosis, the outlook and the reality of it all.. did people find in general they are totally honest and open about it.. ? We have 2 youngish children.. so of course like everyone i guess we need to know all...

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Most doctors will be honest about diagnosis, treatment and prognosis. Insist on it.

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lepa13 | @lepa13 | Jun 8, 2024

I was there 14 years ago. Stay positive.

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jenmeier | @jenmeier | Jun 3, 2024

Thank you for the information. I requested to join the group.

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cobb | @cobb | Jun 3, 2024
In reply to @jenmeier "Hello and thank you. Yes, I have someone going with me. I plan on being involved..." + (show)
@jenmeier

Hello and thank you. Yes, I have someone going with me. I plan on being involved here with the group for information and support so I am grateful in advance to everyone here 🙂

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Another really good resource is the lobular breast cancer (ILC) science and support Facebook group. Extremely knowledgeable and totally supportive. Best of luck to you.

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2 replies
jenmeier | @jenmeier | Jun 3, 2024

Hello and thank you. Yes, I have someone going with me. I plan on being involved here with the group for information and support so I am grateful in advance to everyone here 🙂

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1 reply
Mentor
Laurie, Volunteer Mentor | @roch | Jun 2, 2024
In reply to @jenmeier "Right there with you. Just found out yesterday. I don’t know much about the histology because..." + (show)
@jenmeier

Right there with you. Just found out yesterday. I don’t know much about the histology because the addendum report wasn’t attached to the pathology but the woman over the phone told me it has not spread to other parts of my body. My appointments are lined up for Tuesday. Thinking of you. Let’s stay connected and support each other. Jen

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@jenmeier

Welcome Mayo Connect. You will find many women who are in various stages of treatment for breast cancer. It is great support system for both emotion and practical advice Someone in this group has probably asked the same question you are wondering about.

Patience is key at this time, there is lot of information that will come your way.

Take a note book with you to appointments. Also, if your clinic has online portal, read the provider 's notes after appointment to verify what you heard.

Will someone be going with you to your appointment?

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jenmeier | @jenmeier | Jun 1, 2024

Right there with you. Just found out yesterday. I don’t know much about the histology because the addendum report wasn’t attached to the pathology but the woman over the phone told me it has not spread to other parts of my body. My appointments are lined up for Tuesday. Thinking of you. Let’s stay connected and support each other. Jen

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