Invasive ductal carcinoma (IDC): Anyone else?

Posted by 6750 @6750, Mar 2, 2019

I have rec’d 4 chemo + 16 radiation treatments for invasive. Has lumpectomie 1st….then one week later…
Dissection 17 lymph nodes & 3 tumors removed tumors
Got clean margin.

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I did 5 weeks of proton beam therapy radiation at Mayo Clinic in Rochester, MN. That type of radiation greatly minimizes any risk to the heart and lungs. You would qualify for housing at the Hope House. Had no side effects from the radiation except some blistering of the skin (like a bad sunburn) and some fatigue towards the end. I have taken tamoxifen for 1 1/2 years and am trying to forge ahead even though I have experienced many of the side effects…hot flashes, anxiety, nausea, constipation and fatigue.

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@conniep79

Have a good relaxing Sunday. Rest is important too. Just to let you know, I just started Xeloda to prevent recurrence. Well, lately I haven’t been drinking as much water as I should. I snuck in some red meat and I don’t digest it well. Felt constipated. So, I had some rectal bleeding this morning when I went. I must continue with greens and drinking fluids.

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Check the website Forks Over Knives for some wonderful, whole food, plant based recipes. I don't even fancy meat or dairy any more

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@terryflys4

invasive ductal carcinoma left breast stage 2, grade 1. Surgeon concerned about right breast and thought there might be more growth in left. I have 90 minute one way drive to best area to get help-so decided against getting MRI, went ahead with double mastectomy. Post op yesterday she said my instincts were right and that I’m a conundrum. Instead of another lump in left breast I have many tumors so small they would not show on MRI, also in right breast. I could not take anastrazole due to debilitating side affects (I’m 77 with spine degeneration but otherwise good health). My tumor is not following normal staging and they are doing more advanced tests. She recommends radiation on both breasts, then tamoxifen that apparently strengthens bones as well. I live alone and quality and independence are everything to me at this point. I’m concerned about heart and lung damage from 4 weeks of radiation, have same driving distance issues and would have to spend nights in hotel. Im concerned about destroying my white blood cells in the middle of a pandemic. Am just starting researching and will be interviewing 3 radiation oncologists. At the moment, considering the challenges I’m thinking of taking a chance on just the tamoxifen.

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my case…DCIS in right breast in 2007 and idc in left breast in 2018…. lumpectomies with radiation both times…tamoxifen the first time…anastrozole the second time. I think I am wondering if you have had bilateral mastectomy, then why do you need radiation at all? In my cases, I was told that the radiation should take care of any cancer cells left in the breast. If you have had both breasts removed, then there should not be a need for radiation. The chances of stray cancer cells is minimal. After genetic testing following the second cancer, I found that I have the CHEK2 genetic mutation. I just had a bilateral mastectomy with reconstruction. I was told that this should prevent me getting BC again. There was damage to both breasts caused by the radiation. Who knows what else has been damaged? I think if I had your history, was 77 and was taking tamoxifen, I would pass on the radiation. My cousin has had bilateral breast cancer with mastectomy both times and has passed on having radiation and is not taking aramatose inhibitors and she has not had a problem. Who knows what is the right thing to do. Everyone is different and every case is different.

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@sandyjr

my case…DCIS in right breast in 2007 and idc in left breast in 2018…. lumpectomies with radiation both times…tamoxifen the first time…anastrozole the second time. I think I am wondering if you have had bilateral mastectomy, then why do you need radiation at all? In my cases, I was told that the radiation should take care of any cancer cells left in the breast. If you have had both breasts removed, then there should not be a need for radiation. The chances of stray cancer cells is minimal. After genetic testing following the second cancer, I found that I have the CHEK2 genetic mutation. I just had a bilateral mastectomy with reconstruction. I was told that this should prevent me getting BC again. There was damage to both breasts caused by the radiation. Who knows what else has been damaged? I think if I had your history, was 77 and was taking tamoxifen, I would pass on the radiation. My cousin has had bilateral breast cancer with mastectomy both times and has passed on having radiation and is not taking aramatose inhibitors and she has not had a problem. Who knows what is the right thing to do. Everyone is different and every case is different.

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sandyjr, may I ask your cousin’s age and how long since her surgery?

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I am not 100% sure of this information… My cousin first had cancer in 2013 and I think the second occurrence was 2016 in the other breast. She had mastectomies both times. She is in her 70s now… I believe 75.

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I got some encouraging news today that the higher level scan of cells shows low risk

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@sandyjr

my case…DCIS in right breast in 2007 and idc in left breast in 2018…. lumpectomies with radiation both times…tamoxifen the first time…anastrozole the second time. I think I am wondering if you have had bilateral mastectomy, then why do you need radiation at all? In my cases, I was told that the radiation should take care of any cancer cells left in the breast. If you have had both breasts removed, then there should not be a need for radiation. The chances of stray cancer cells is minimal. After genetic testing following the second cancer, I found that I have the CHEK2 genetic mutation. I just had a bilateral mastectomy with reconstruction. I was told that this should prevent me getting BC again. There was damage to both breasts caused by the radiation. Who knows what else has been damaged? I think if I had your history, was 77 and was taking tamoxifen, I would pass on the radiation. My cousin has had bilateral breast cancer with mastectomy both times and has passed on having radiation and is not taking aramatose inhibitors and she has not had a problem. Who knows what is the right thing to do. Everyone is different and every case is different.

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.

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@6750

I go for 1st appt 3/15/2019 after completion of treatments in Nov 27. I am so happy who shares their journey.
It is not a journey anyone wants to take.
Thank you. I truly did not ask ??? I just listened & have followed drs orders. I did know what to ask.Because of this place I have & learning
things I did not know.🙏🏻🙏🏻🙏🏻You .
I will be 72 in June…
twist # & I’m just “27”🤗
No family but me among all the billions of people
In this world. Best friends live ou-of-town

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@6750…how are you doing now? I am 73 and have IDC.

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I have invasive ductile carcinoma in left breast – very small, slow growing and Stage 1. Trying to decide between lumpectomy and mastectomy- thoughts?

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@flowers7777

I have invasive ductile carcinoma in left breast – very small, slow growing and Stage 1. Trying to decide between lumpectomy and mastectomy- thoughts?

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Was diagnosed on April 14. Stage 1a, IDC, HR+PR+HERs2-
The surgeon in Duluth told me that lumpectomy w/radiation ahas nearly the same outcome as mastectomy so I chose lumpectomy with sentinel node biopsy. Not for vanity (I am 73) but for the healing. Had surgery on May 14 in Duluth. I am in the process of 2nd opinion for radiation/hormone therapy at Mayo.

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@sandyrob

Was diagnosed on April 14. Stage 1a, IDC, HR+PR+HERs2-
The surgeon in Duluth told me that lumpectomy w/radiation ahas nearly the same outcome as mastectomy so I chose lumpectomy with sentinel node biopsy. Not for vanity (I am 73) but for the healing. Had surgery on May 14 in Duluth. I am in the process of 2nd opinion for radiation/hormone therapy at Mayo.

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Thank you for your reply!

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Encouraging to see the development of breast cancer treatments. I had IDC in right breast 1992. Mastectomy and chemo. No positive lymph nodes.
I have had no recurrence, but illnesses caused by chemo- autoimmune GI illness. It is good to see there are more options now.

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