Invasive ductal carcinoma (IDC): Anyone else?

Hi Papua, I am sorry to hear about your diagnosis. It is very scary to hear at first. I was diagnosed in March and had a double mastectomy. Hearing the news can be very overwhelming but there is a lot to learn after. Stage, size of tumor etc. please email me if you would like to connect on this. Stacey

I had invasive ductal cancer stage 2 Post menopause age 59. Cancer is gone with clear margins. You got this. Had radiation for 6 weeks I had no issues health wise. Had skin burned near my collarbone put cream on it and was good to go. Taking anastrozole for the next 5-7 years. We are all supporting each other.

Welcome @roncii, I moved your question about ductal carcinoma to this existing discussion:
- Invasive ductal carcinoma (IDC): Anyone else? https://connect.mayoclinic.org/discussion/invasive-duct-ca

Click the link to read previous posts and to connect easily with other members like you. What treatment options are you considering? What questions do you have?

Many of us on the breast cancer threads have had ductal carcinoma: it is the most common form of breast cancer. After your surgery there will be tests on the tissue that guide treatment. This is the hardest time, when you are waiting for a plan. Many of us also are doing well years after diagnosis.

Dear onlines friends,
I am from Papua New Guinea and I was digonose with Ductual Carcinoma today and was really scared.

I am still thing on how I will go through as cure that illness. Is someone out there being digonose with same issue?

Thanks for all your feedback! I will reach out again to my oncologist regarding an MRI - waiting an entire year for any scan after ILC seems to be contrary to everything I've read. The NP said MRI would only be ordered if I had the BRAC gene which I didn't.

To @baylaurel, I was able to skip chemo after lumpectomy (2cm , stage 1) given Oncotype score of 14. One month post surgery I had 19 radiation treatments and now on Letrozole (been 3 months). Best of luck and keep us posted.

3D Mammo and ultrasound did NOT find two large tumors in one breast. I was symptomatic and strongly requested an MRI.. and three biopsies later =IDC

Now, post unilateral mastectomy I am monitored annually with MAMMO and MRI alternating every 6 mos.

Certainly in my case, with dense breasts, MRI is the detection of choice. IMO it should be standard as it finds tumors hiding in dense breasts.
Your health care professionals will make choices based on your profile but self advocacy for MRI is an option too. Best to you and to all of us negotiating this journey. 🌸

I was just diagnosed this week with invasive lobular carcinoma. Strongly ER+, PR+ HER2neg. Nothing showed on 2 mammograms or with 2 ultrasounds. I was told to wait 6 months and repeat mammogram. I had a distinct lump and insisted on a referral for biopsy and so here we are. Based on my experience, I would do the MRI (I am having one next week to, I think, determine how far the ILC has spread to help formulate a treatment plan). May I ask how long your radiation was? And again, I would not rely on a mammogram. Take care.

Just to reassure you, ki67% is included in the Oncotype test and your results were low at 14.

Hi everyone -
I'm confused as I (57 yrs) recently finished radiation (invasive Lobular -2cm , grade 2 ILC, strongly ER+, PR+, HER2 neg, 0/1 SN) after lumpectomy . My onco was 14 so skipped chemo, and started Letrozole. I saw NP at Dana Farber yesterday for 6 month follow up and she scheduled a diagnostic mammo for Oct (year after initial diagnosis). I never received any info on tumor markers, this Ki-67 you're all referring to. Is this something that should have been reviewed? Also I mentioned that with my dense breasts, why am I waiting an entire year before another scan/mammo and the NP said the oncologist feels "prior studies showed that a 3D mammogram 1 year after the last study was the best approach – mammograms done 6 months after surgery did not add anything."

I realize that MRI seems to be best for dense breasts but onco said not necessary unless mammo finds something. Any thoughts/comments much appreciated!